Frankly, your ENT should be aware of that aspect of acoustic neuromas. Unfortunately, some doctors are better informed on these benign tumors than others. Jim
Hi Molly, I too, extend a welcome to you. (But sorry you had to join the AN club!)
I was misdiagnosed for a long time, going twice to local ENTs in 12+ years.
Meanwhile, my sister goes with similar symptoms and has a diagnosis in 6 months, omgosh!
I used to be so angry about this - now i realize, as Jim points out, that some doctors just don't know. (even though you would think they WOULD at least have an idea.)
There are those here who didn't have this wonderful forum before treatment - God Bless them, and all the others, who now freely and patiently explain their experiences so we may all learn.
This is a WONDERFUL place, with FANTASTIC people! So please, take a deep breath, and keep reading!
When it gets to be too much, take a break.
You can use the Personal Message function if you want to talk to other 'forumites' directly.
All my thoughts and prayers are with you.
Take care and keep in touch.