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Author Topic: 2 year follow-up (tumor free)  (Read 5156 times)

jtd71465

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2 year follow-up (tumor free)
« on: February 10, 2009, 03:20:49 pm »
Just got back from my 2 year follow-up MRI in NYC, happy to say all is well.  My Dr.'s said that if year 3 is the same I will not have to see them until year 5. 

It seems like yesterday when I was talking in days and months not years. 

Thanks to all my AN friends  that I have made along the way, I look forward to seeing you all again.

God is good all the time.

Joe-
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Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

Jeanlea

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Re: 2 year follow-up (tumor free)
« Reply #1 on: February 10, 2009, 03:29:22 pm »
Congratulations on having a great 2 year follow-up.  Happy to hear that you had a good appointment.

Jean
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

Jwh

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Re: 2 year follow-up (tumor free)
« Reply #2 on: February 10, 2009, 04:28:52 pm »
Joe,

Excellent!!!  ;D ;D ;D

 I can't wait to say the same.  We are both sooo lucky that we had such skilled surgeons.  I went to Dr. Roland's on Friday and he removed my stitches.  He's such a great compassionate doctor. 

I'm feeling pretty good so far - no complaints here.  I would like to compare notes.  When did you drive for the first time?  When were your restrictions lifted etc.  We only live 10 minutes apart maybe sometime we could get together and share our experiences?

Jen
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

allegro17

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Re: 2 year follow-up (tumor free)
« Reply #3 on: February 10, 2009, 05:01:57 pm »
Congrats!

I was in thier office today myself for a consultation.  Also happened to meet another forum member while at another consult this afternoon!   How random :)-
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jtd71465

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Re: 2 year follow-up (tumor free)
« Reply #4 on: February 10, 2009, 07:06:43 pm »
Jen-

Like you I have nothing be nice things to say about those two Dr.'s...I'm going to miss not going in on year 4.  Call me anytime to talk...I usually get home around 5:45PM.

Joe-
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Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

nancyann

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Re: 2 year follow-up (tumor free)
« Reply #5 on: February 10, 2009, 07:36:02 pm »
WHOO - HOO ! ! ! ! !     Great news Joe ! ! ! - I remember I was so happy to hear there was no regrowth with my 2nd MRI.   
Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
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2.4 Gm. Platinum chain 2017
right facial paralysis

jerseygirl

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Re: 2 year follow-up (tumor free)
« Reply #6 on: February 10, 2009, 07:39:13 pm »
Great news, Joe! It sure feels good to be tumor-free!

                Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

texsooner

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Re: 2 year follow-up (tumor free)
« Reply #7 on: February 10, 2009, 08:06:20 pm »
Congrats Joe! Hope to follow in your footsteps going forward.

Patrick
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3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

4cm in Pacific Northwest

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Re: 2 year follow-up (tumor free)
« Reply #8 on: February 10, 2009, 08:10:11 pm »
Way to go!

DHM
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

carter

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Re: 2 year follow-up (tumor free)
« Reply #9 on: February 10, 2009, 09:04:04 pm »
congrats 

i will be glad to hit 5 weeks


carter
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Diagnosed in fall of 2008 with 1.6 * 2.9cm AN on left side. 

Scheduled CK at Oklahoma Cyber Knife in December, 2008 and decided not to proceede on 2nd date that CK was scheduled.  I fired them.

CK performed at St John's Hospital (Tulsa)Jan 2009

chocolatetruffle

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Re: 2 year follow-up (tumor free)
« Reply #10 on: February 10, 2009, 09:12:31 pm »
YAAHHOO!!!! congrats to you, it must be a load off your shoulders and god IS good  ;D
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chocolatetruffle


2.8 cm left AN
Translab @ House/St Vincent's 11/27/07
Drs. Brackmann, Schwartz, Wilkinson, Stefan

MAlegant

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Re: 2 year follow-up (tumor free)
« Reply #11 on: February 10, 2009, 09:21:06 pm »
That's so great.  I wish the same for all of us!  Today is a good day to celebrate.
Marci :D
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Sue

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Re: 2 year follow-up (tumor free)
« Reply #12 on: February 11, 2009, 01:25:00 am »
No news is definitely good news!  :D  Now you can relax for awhile. 

Sue in Vancouver USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Jwh

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Re: 2 year follow-up (tumor free)
« Reply #13 on: February 11, 2009, 06:12:16 am »
Joe-

I know it! I was talking with my mom yesterday and I said I wanted to go back to Dr. R's before my 3 month MRI just to check in.  He is so comforting.  He makes me feel at ease and always has an answer to my questions.  It probably sounds strange to others to hear that you'll miss him at the 4 year mark, but I totally get it.

I'll take you up on your offer and give you a buzz.

Jen
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

ppearl214

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Re: 2 year follow-up (tumor free)
« Reply #14 on: February 11, 2009, 06:34:16 am »
Joe,

I can't believe it's already 2 yrs... seems like yesterday! Congrats on the news and continued wellness wishes coming your way! :)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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