Author Topic: Taking Pamelor to help wean me off the Tylenol  (Read 37651 times)

Syl

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #60 on: March 22, 2009, 11:22:10 pm »
Anne Marie:

What are toradol and neurontin for, if you are still in so much pain?

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Syl

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #61 on: March 23, 2009, 11:37:27 am »
Hello everyone,

I just realized that I haven't had a headache since last Tuesday, when I feared I wouldn't make it to work. That's almost a week of freedom from those ugly headaches that tend to greet me when I wake up.

I'm still having some pain throughout the day, such as the soar neck, or the sharp short-lasting stabs of pain somewhere around my surgery incision. But this is all very minimal compared to the debilitating headaches.

But wait, there's more. I feel even better than I did last week. I still feel tired at times, but I'm not dragging myself out of bed, around the house or around work like I did for the past 6 or 7 weeks. Actually, I haven't felt this good since before my surgery back in June 2008. Even the dizzines has diminished. Makes me wonder if Tylenol was adding to the dizziness.

I hope it lasts.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

EJTampa

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #62 on: March 23, 2009, 11:44:33 am »
Hi Syl,
 
Got any wood nearby to knock on?  :D  That's some awesome news for sure.  I get those short bursts of pain, not really the incision, but behind it, inside the head.  Lets go for another headache free week, shall we!?!?
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

yardtick

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #63 on: March 23, 2009, 12:12:34 pm »
Syl,

Oh HAPPY DAY  ;D  Doing the happy dance!!  My fellow Canadians know what the happy dance is  ;)

toradol is an anti inflammatory and neurontin is for neuropathic pain and HEADACHES.

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Janet

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #64 on: March 23, 2009, 03:05:07 pm »
Anne Marie,

You can get a second opinion by sending your MRI and info to the states. It doesn't mean you need to have surgery or treatment with them. It might be reassuring to know that other doctors agree with the plan set forth by your docs.

Your situation sounds complex and it might be helpful to get a second opinon from experts in AN's, facial neuromas and trigeminal neuralgias. The Skull Base Institute in LA is a Center of Excellence that might have some insight, as they deal with all of these issues. 

http://www.skullbaseinstitute.com/second_opinions.htm

Best Wishes,
Janet







Surgical removal of 1 cm x .8 cm x .6 AN on 4/2004.

yardtick

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #65 on: March 23, 2009, 03:41:57 pm »
Thanks Janet I will looking to this after my next MRI in June.

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Syl

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #66 on: March 24, 2009, 12:24:46 pm »
Syl,

Oh HAPPY DAY  ;D  Doing the happy dance!!  My fellow Canadians know what the happy dance is  ;)

Anne Marie

But isn't the Happy Dance one of Canada's great gifts to the world? I don't think it's American.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

yardtick

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #67 on: March 24, 2009, 01:02:48 pm »
Syl,

One of many gifts.  I think poutine is the greatest gift!!

How are you feeling today? 
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Syl

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #68 on: March 24, 2009, 01:50:14 pm »
Ane Marie:

I must confess I had to google poutine. Don't know where I can get some in the Stockton, California area.

Today, I woke up with a soar neck fearing it would develope into a headache. But it didn't!!! Today, it is officially a whole week without a nasty headache. I recently began to feel that my head and body are connected--less wonki-headedness. Haven't felt that since before my surgery back in June of 08.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

yardtick

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #69 on: March 24, 2009, 10:11:47 pm »
Syl,

Such wonderful news.  One day I will be celebrating along with you!

If you get the chance to have poutine, I'm sure you will enjoy it!!  Had some on the weekend when I was out shopping with my husband. 

*Warning anyone with heart problems or high cholesterol, poutine is not for you!*   ;)

Anne Marie

Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

sgerrard

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #70 on: March 24, 2009, 10:29:26 pm »
I recently began to feel that my head and body are connected

That is a good sign. Very helpful if you are going to be wearing a hat.  ;D

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Syl

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #71 on: March 28, 2009, 02:08:51 am »
Yeah, Steve, check out my hat.
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

EJTampa

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #72 on: March 28, 2009, 06:40:26 am »
Syl!  What a perfect color for you!  How much longer do you suppose it will be before every postie here has an avatar with a knit hat on? :)
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

sgerrard

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #73 on: March 28, 2009, 10:54:46 am »
That's what I'm talking about. Looks great, Syl!

Is that a cell phone picture?

Does it help with headaches?  ::)

Ernie, unless some others join in on the knitting, I don't think I can keep up, much less catch up. But I will try. :)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Syl

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Re: Taking Pamelor to help wean me off the Tylenol
« Reply #74 on: March 28, 2009, 11:10:27 am »
Ernie:
Looks like steve can use some help. You still have 2 week before you go back to work, don't you?

Stevie:
I took that photo with my camera. Maybe I didn't wear the hat long enough because I got a headache early this morning. Maybe I need to sleep with it on.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.