Hello, LisaP from Chicopee,
I live in Ware. I saw Dr. Mason as my ENT, then Dr. Oh, surgery, and Dr. Yunes, radiation, all at BSMC. Although all of them had no problems with me searching out second opinions, they did not encourage me quite the way Dr. Petcu did.
I feel that the size of my tumor gives me a little time, but not that much. And as everyone writes - it is confusing and there are no perfect options. At this time I will try to make an appointment with Dr. McKenna and go from there.
Dr. Oh does the translab surgery and he told me hearing loss would be 100% (and I still have good hearing). Dr. Yunes told me he had no one with facial paralysis/paresis in his 1 and 1/2 years of working with the proton machine. But - they just do about 8 procedures a year, and from reading, it seems that is not quite enough for experience. However, at MGH or Beth Israel - how many docs do how many procedures? I was thinking, just because they do a hundred or more a year at the facility, does the indvidual doc do that many?
Anyway, this site is incredible and everybody is just unbelievable helpful. I would greatly like to meet some of you if you are still meeting in April in Worcester, circumstances permitting.