Author Topic: Progress at seven months: photos added  (Read 8820 times)

saralynn143

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Progress at seven months: photos added
« on: January 03, 2009, 06:13:39 pm »
Yesterday marked seven months post-op for me. I have not been checking my facial progress daily, or even weekly, because as you well know, the progress is so slow and subtle that I would never notice anything.

But also yesterday, I happened to have on a small closed-mouth smile while looking in the mirror, and I could see movement in my cheek! Not much, but it is there. Mostly around the corner of my mouth and a little upward and outward from there. I tried a big smile and while there is no perceptible change there (yet), I am still tickled pink about the movement that is there.

Anyway, that is my happy new year story, and I am sticking by it.

Best to you all,
Sara

P.S. I've added photos. Please scroll down.
« Last Edit: January 12, 2009, 04:25:14 pm by saralynn143 »
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

MAlegant

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Re: Progress at seven months
« Reply #1 on: January 03, 2009, 07:46:37 pm »
Yay!!!!  ;D
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

wendysig

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Re: Progress at seven months
« Reply #2 on: January 03, 2009, 09:18:47 pm »
Hi Sara and Happy New Year!

Every victory, be it big or small is something to be celebrated!  Congratulations on getting some facial movement back.  You have a lot of will power -- I would be checking every day!

Wishing you continued good healing,
Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

mimoore

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Re: Progress at seven months
« Reply #3 on: January 03, 2009, 09:26:45 pm »
YAHOOOOOOOO SARAH! KEEP THE MOVEMENT COMING!!!
« Last Edit: January 03, 2009, 09:29:08 pm by mimoore »
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

Jeanlea

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Re: Progress at seven months
« Reply #4 on: January 03, 2009, 09:51:26 pm »
Sara,

Congratulations to you!  It is a good feeling to notice new movement in your face.  Just think what may happen by this time next year.  :-)

Jean
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

Jim Scott

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Re: Progress at seven months
« Reply #5 on: January 04, 2009, 04:23:13 pm »
Sara:

Allow me to add my congratulations for - not only the small-but-significant facial movement you've noticed - but also on your patience, which is definitely being rewarded.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: Progress at seven months
« Reply #6 on: January 04, 2009, 06:20:12 pm »
Sara -

congratulations!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

LADavid

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Re: Progress at seven months
« Reply #7 on: January 04, 2009, 08:09:31 pm »
Yay, Sara!  Keep it up!
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

Debbi

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Re: Progress at seven months
« Reply #8 on: January 06, 2009, 01:22:06 pm »
Sara-

I was so happy to read your post!  I got a major leap of progress between 6.5 and 7.5 months, so maybe there is something magical about this time period - let's hope so!  Are you doing facial exercises still?  I have started new ones now, based on the greater movement in my cheek (and also based on some warning signs with bunched-up muscles).  It is nice to actually be able to make something move finally.

I am sending lots of good ju-ju your way for continued progress.  Keep us posted, please.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

saralynn143

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Re: Progress at seven months
« Reply #9 on: January 06, 2009, 03:28:11 pm »
Hey Debbi, I am not doing any facial exercise. The only thing I have ever done is massage at bedtime when I put my face cream on. The facial nerve specialist I see told me specifically not to do any type of exercises or exaggerated movement to avoid developing synkenesis. So far so good on that count.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

saralynn143

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Re: Progress at seven months
« Reply #10 on: January 12, 2009, 04:24:30 pm »
I am adding photos to compare facial paresis at three and seven months post-op:



Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

yardtick

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Re: Progress at seven months: photos added
« Reply #11 on: January 12, 2009, 05:11:30 pm »
Looking good Sara!

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Kaybo

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Re: Progress at seven months: photos added
« Reply #12 on: January 12, 2009, 05:26:38 pm »
Sara~
Your progress looks great!!  So excited for you!!  YIPEEEEEEEEEEEEEEEEEEE!!!!!!!!!!!!!

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

lori67

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Re: Progress at seven months: photos added
« Reply #13 on: January 12, 2009, 05:39:28 pm »
Sara -

You look awesome!  That is definitely a smile you've got there!  What good news for you!

Before long, you'll be grinning ear to ear!   ;D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Brendalu

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Re: Progress at seven months: photos added
« Reply #14 on: January 13, 2009, 05:53:09 am »
Sara,

You look awesome!!  I'm sure that before you know it you will be posting a pic with a huge smile!  Congratulations and good thoughts for continued progress.
Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT