I'm glad you found this forum. It was a lifeline to me when I found out about my AN 2 months ago, and has been where I have read most of the information I know about AN's, or the people have pointed other websites to me to go research. It is an amazing support group. I had many sleepless nights for the first month or so after I found out. The worry was exhausting. I think the more you learn about your AN, and arm yourself with the options available, and start becoming proactive in your journey, then you may feel more at ease and begin to rest easily again.
The one thing that made me feel more in control was finding the best facilities for my individiual preference of treatment (radiation). I had a letter written up, and sent each facility/doctor my letter and MRI and audiology tests. From everything I read, your AN is not too large for radiation, but of course a doctor would have to take a look at your MRI.
The hospitals I contacted were Johns Hopkins, Stanford and Beth Israel. I liked the hypo-FSR treatment, and decided to pursue that path. Johns Hopkins uses the novalis machine, Stanford and BI use the cyberknife. They do basically the same thing, but the cyberknife is more accurate in targeting the tumor. I decided on Stanford with Dr. Chang and his team.
It's funny that you mention your ENT didn't send you for an MRI? Mine didn't either, what's up with that? Why wouldn't they do that, it's so odd. She misdiagnosed me and said she thought I had meniere's disease, patted my head and sent me of my way. I found out about neurotologist from a meniere's disease website and made an appt. with one, who immediately had me take an MRI and found the tumor.
The archives are full of great info, too. I even PMed a lady who had hers done 3 years ago (cyberknife) to see how she was doing, wondering if she even visited the boards anymore. She contacted me within a few days and has been great support, too.
It's nice to know there are others out there that are experiencing this same bizarre weird turn of events, and we can lean on each other's shoulders. Although I've been the one doing more of the leaning the past 2 months! And these great people have very strong shoulders! Take care.