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Author Topic: Is this synkinesis?  (Read 6702 times)

mimoore

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Re: Is this synkinesis?
« Reply #15 on: November 20, 2008, 04:09:55 pm »
[[[[[[[[[[[[[big squeeze Angie!]]]]]]]]]]]]]]
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

CROOKEDSMILE

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Re: Is this synkinesis?
« Reply #16 on: November 20, 2008, 04:15:11 pm »
Susan,
My facial retrainer is Cathey Norton at Vanderbilt. She trained under Jackie Diehls in Wisconsin. I go every 3 months.
Angie
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MKLady

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Re: Is this synkinesis?
« Reply #17 on: November 20, 2008, 05:26:21 pm »
Thank you Angie.  I'm going to give them a call.  I'm not sure at what point one is ready for facial retraining. I've got movement in the corner of my mouth and it is loosening up.  My surgeon told me the face couldn't be retrained after age 5.  I've heard too many positive outcomes here to believe that completely.  So I'm on my own to find one.
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Translab 4/10/2008; 1.3 cm; total facial paralysis left side.

hruss

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Re: Is this synkinesis?
« Reply #18 on: November 26, 2008, 04:34:42 pm »
Well said Susan!!

angie, we have gone through so much that others minor concerns should not bother us at all!!

We Are Strong!

Hrissy
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4.5cm right AN pressing on the brain stem, dn Sept 2007
2 Retrosigm surgeries in Oct 2007 and Jan 2008 by the Bulgarian prof. Kyrkeselian partially removed.
3rd retro surgery in Hannover,Germany by prof Samii, Oct 2008. SSD
Got rid of my bugger, temp facial paresis
hrissysexperiences.blogspot.co
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