Author Topic: Frustrated  (Read 7959 times)

mimoore

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Frustrated
« on: October 21, 2008, 12:22:19 pm »
Okay so finally I decide to have an internal weight put in and guess when my appointment is? January 30th - three months (my nerve has started to regenerate near my eye) I might blink on my own by then. I need it now to cope. Oh I am having a frustrating day!!!!!!!!ggggrrrrrrrrrrrrrrr
Michelle
sorry needed to vent
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

saralynn143

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Re: Frustrated
« Reply #1 on: October 21, 2008, 02:26:34 pm »
Michelle, call the office and ask to be put on a cancellation list if something comes up sooner. I got really lucky with mine. Dr. Custer was able to fit me in his surgery schedule the very next day after our consult. The surgery nurse told me he usually has a four to six week waiting list. I'm so glad I took the opening!

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

texsooner

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Re: Frustrated
« Reply #2 on: October 21, 2008, 03:04:22 pm »
Michelle, I sort of know how you feel. It has been a bad eye day for me too. I'm typing with one very blurry eye as I'm pouring drops in about every 20 minutes. If my eye ever gets better and starts to get tears, I feel sorry for Allergan(company that makes Refresh) as their sales will drop big time.

Hopefully your eye will get much better soon where you won't need the January appt.

Patrick
3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

Kaybo

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Re: Frustrated
« Reply #3 on: October 21, 2008, 03:10:45 pm »
Oh Michelle~
That just stinks!!  I am so sorry!  I am with Sara - call back & see if you can be on a cancellation list!

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

mimoore

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Re: Frustrated
« Reply #4 on: October 21, 2008, 03:23:29 pm »
Thanks guys I feel the cyber love. I had to laugh at you Patrick-Refresh shares will drop once I am done with them. hehehe  ;D
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

lori67

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Re: Frustrated
« Reply #5 on: October 21, 2008, 03:30:03 pm »
I think the garage surgery business might have to add eye weights to the menu!  I don't know about extra platinum or gold around the house, but we've got plenty of small washers.   :D

Good advice from Sara about the cancellation list - that's what I did for my 7-12 a few weeks ago and I was able to get in a week earlier than planned.  Not a huge deal, but every little bit helps!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

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Re: Frustrated
« Reply #6 on: October 21, 2008, 03:37:48 pm »
Hey!!
I do have a collection of weights - I have a gold one and a platinum one.  I was thinking of starting a charm bracelett of eye weights, but hey, I would love to help a fellow ANer!  To be quite honest, the price of gold right now, I was thinking about selling it.  It made me start thinking that I should just dumpster dive behind the OR - they dug mine out of the trash b/c I said I wanted it and they forgot until Dave reminded them.  Hello, that was $800-$900 an ounce!! ;D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

saralynn143

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Re: Frustrated
« Reply #7 on: October 21, 2008, 04:13:11 pm »
That's funny, Kay. My son announced one day that the average value of elements in the human body totaled $4.50. After I got my eyelid weight I checked the value of platinum on the internet. 1.8 grams was worth over $55, so my value has skyrocketed. Now I need to find out how much titanium mesh is lurking in my skull and add that on as well.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

CROOKEDSMILE

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Re: Frustrated
« Reply #8 on: October 24, 2008, 04:16:06 pm »
Michelle,
Just an idea.....if you're not too set on having this particular doctor do it then have you checked with other docs in the area that do the surgery. It's pretty simple stuff compared to everything else you've had done. I had a plastic surgeon do mine and did fine other than too heavy of a weight which you can prevent by making sure beforehand when he's testing weights on you that if it droops before surgery......hello......it's gonna droop afterwards. I think ENT's, General Plastic Surgeons, Opthalmologist, Oculoplastic surgeons, etc. do the surgery so you could pretty much take your pick if you live in a fairly decent sized city with options.
Angie

mimoore

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Re: Frustrated
« Reply #9 on: October 24, 2008, 04:23:18 pm »
Hmmmmmmm good idea...I will check Monday..to be continued.  ;D ;D
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

lori67

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Re: Frustrated
« Reply #10 on: October 24, 2008, 05:07:41 pm »
Sara,

Better keep your new "value" to yourself or your son may be selling you to the recycling center for a little extra spending money.  My husband told me yesterday that if the economy doesn't get any better, he's going to have to steal my BAHA abuttment while I'm sleeping so he can pay some bills.   :o

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

CROOKEDSMILE

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Re: Frustrated
« Reply #11 on: October 25, 2008, 07:43:09 am »
Lori,
You truly crack me up.
Angie

bltfollis

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Re: Frustrated
« Reply #12 on: November 02, 2008, 09:43:57 am »
hey michelle i feel your frustration i was at tthe surgeons office for my consult for the wt and tuck 2 wks ago and the soonest is sometime in december i guess there is a country wide demand for eye wts and tucks maybe in 2009 they will be all the fashion rage and all the movers and shakers will want one,

chin up or should i say eyelid up ,take care bill

ps: if you normally use an opthamalogists ask him if he might suggest someone?

mimoore

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Re: Frustrated
« Reply #13 on: November 02, 2008, 08:10:15 pm »
Ha ha Bill you are funny. I can only laugh because really nothing else works. In the meantime lets pray for our eye function to return and we can say "Sorry we don't need you" now that would be funny!
Michelle  ;D :D ;)
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

bltfollis

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Re: Frustrated
« Reply #14 on: November 08, 2008, 08:36:15 am »
hey michelle any luck getting a sooner date than january
bill

 


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