Author Topic: Anyone from Portland Oregon????  (Read 6786 times)

DontLookBack

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Anyone from Portland Oregon????
« on: September 22, 2008, 10:27:34 am »
Hello Everyone!
Just wondering if anyone is from Portland or the Pacific Northwest. I was wondering if there were any local support groups or maybe we could create one. I do love these forums and on-line groups and would love to see if theres support outside of here.
Thank you,
Kelly White :)
Kelly White

leapyrtwins

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Re: Anyone from Portland Oregon????
« Reply #1 on: September 22, 2008, 11:31:43 am »
Kelly -

Steve (sgerrard) is from Portland.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

mindyandy

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Re: Anyone from Portland Oregon????
« Reply #2 on: September 22, 2008, 03:09:03 pm »
I'm not from Portland but am from Snohomish County Washington.
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Jackie

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Re: Anyone from Portland Oregon????
« Reply #3 on: September 22, 2008, 05:15:48 pm »
Hello Kelly,

I am from Beaverton Oregon, which is a suburb of Portland!!! We do have a support group and the last meeting was just this past Saturday! I was unable to go to that one, but I am sure Steve will chime in and DHM (Daisy Head Maisy) too! I am a watch and waiter for now! Welcome aboard, there's lot's of help from all these wonderful people!
Jackie
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

leapyrtwins

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Re: Anyone from Portland Oregon????
« Reply #4 on: September 22, 2008, 08:46:54 pm »
Nice photo, Kelly  ;D

Good to "see" you.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Anyone from Portland Oregon????
« Reply #5 on: September 22, 2008, 09:32:56 pm »
Ding!

That was me chiming in.  ;D

We did have a meeting Saturday, and DHM ran the meeting, in her new role as co-leader! Jerry is still the other co-leader, but he went off to a wedding (looking dapper for a change). Next one is Dec 6th, 12:30 pm, Casey Eye Institute, all about facial retraining, and sure to be good. DHM will have all the details.

Mindy, is there a group up in Snohomish? You can come to Portland if you want... Jackie we missed you, but we will see you next time I hope.

Oh, and Hi, Kelly, welcome to the forum.  :)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jackie

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Re: Anyone from Portland Oregon????
« Reply #6 on: September 23, 2008, 12:05:30 am »
Hi Steve,

Now I really feel wanted, since you missed me at the meeting! I will look forward to the next one, and hopefully Kelly will be able to join us too! How was the turn out???
Jackie
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

mindyandy

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Re: Anyone from Portland Oregon????
« Reply #7 on: September 23, 2008, 12:21:09 pm »

Mindy, is there a group up in Snohomish? You can come to Portland if you wantSteve
No group to my knowledge. I know that there is a get together sometimes in or around the Seattle area. I missed the last one.  :'(
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Sue

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Re: Anyone from Portland Oregon????
« Reply #8 on: September 23, 2008, 01:52:06 pm »
Hi from Vancouver, WA, formerly from Portland.  I haven't yet made it to the local support group....seems like something else conflicts with the meetings every time they have one.  I do hope to make it to one eventually.

Sue in Vancouver, USA
Sue in Vancouver, USA
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Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
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4cm in Pacific Northwest

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Re: Anyone from Portland Oregon????
« Reply #9 on: September 23, 2008, 02:15:01 pm »
Heads up we are getting the flyers in the mail out to the Portland and Seattle area group members . Apprently the Seattle group is not active, at the moment, thus we are extending invitations to them too.

Here is a sneak peak...

You are cordially invited to attend…

a presentation by the

PORTLAND, OREGON
LOCAL SUPPORT GROUP
Presents

Options for Facial Rehabilitation

Speakers
Wanda Crook, Physical Therapist:
 Neuromuscular Facial Retraining Specialist
From: Movement Learning Center, San Diego, CA

Dr. John Ng. MD, FACS
Ophthalmic Facial Plastic and Reconstructive Surgery Specialist
From: OHSU Casey Eye Institute, Portland, OR

When:
Saturday, December 6, 2008 @ 12:30 p.m.

Where:
Oregon Health and Science University (OHSU)
Casey Eye Institute’s MacDonald Auditorium.
3375 SW Terwilliger Blvd., Portland OR 97239

Friends, family members and interested persons are welcome!  We hope you can join us for education, information, support and networking.
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All members who are registered, from these two regions, with the ANA- will get a flyer .

Welcome Kelly!

OH and Jackie- I missed you too :-*
 ;) ;D


Keep moving forward... and go to support group meetings;D

DHM


Also rumor has it that "moderator Sunny-Disposition-Steve"   ;D might be presenting to us - on the Intel campus this winter... introducung "the on-line ANA discussion forum" to people who are intimidated by the use of computers and the internet... and helping them to feel welcomed by our larger ANA community.
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

leapyrtwins

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Re: Anyone from Portland Oregon????
« Reply #10 on: September 23, 2008, 09:59:24 pm »
Also rumor has it that "moderator Sunny-Disposition-Steve"   ;D might be presenting to us - on the Intel campus this winter... introducung "the on-line ANA discussion forum" to people who are intimidated by the use of computers and the internet... and helping them to feel welcomed by our larger ANA community.

Steve -

I hope this rumor is true.  The forum is a wonderful resource for AN patients and their families and we need to spread the word.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

 


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