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Author Topic: Sue L Surgery Update  (Read 8355 times)

Pooter

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Re: Sue L Surgery Update
« Reply #30 on: August 10, 2008, 09:18:19 pm »
I'll keep it brief too. Welcome home!  Get back to resting! :)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Lamsue23

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Re: Sue L Surgery Update
« Reply #31 on: August 11, 2008, 12:44:42 am »
Hi eveyone, I have been trying to put that picture on with the "magic AN scarf " and I don't know what I'm doing wrong.  I know that was explained before but shame on me for not following at that time.  I know about going into your profile, but the address you have to enter I don't know what address I have to use.  My pictures are on My Pictures File.  I know I will get directed with this.  Thanks!! 

Surgery, retrosigmoid 1.3 cm
Darthmouth-Hitchcock Medical Center
Lebanon, NH
Dr. Erkmen, neurosurgeon
Dr. Morrisson, Neuro-otology
7.5 hrs. MRI/CT showed all taken out.


Left transtemporal skull base approach to the posterior cranial fossa.
Resection of left vestibular schwannoma, intradural lesion,left posteirior fossa
Harvest of abdominal fat graft
intraoperative microscopic technique
Cranioplasty, less than 5 cm.

 
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SueL/from NH
Retrosigmoid Surgery 8/6/2008 DHMC, Lebanon, NH 7.5 hrs.
Dr. Erkmen - neurosurgeon
Dr. Morrisson - neuro-ostology
Loss of hearing 70% in left ear.
Vision and Balance issues...Taste!!

krbonner

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Re: Sue L Surgery Update
« Reply #32 on: August 11, 2008, 08:05:13 pm »
It's so good to hear from you, Sue! I've been thinking of you.

We had a great weekend in NH despite all the rain.  You can thank your cousin at Storyland for us. :-)

Katie
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diagnosed June 2005
2.3cmx1.6cmx1.4cm left AN
translab Sept 13, 2006; Drs. McKenna and Barker in MA (MEEI/MGH)

Debbi

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Re: Sue L Surgery Update
« Reply #33 on: August 12, 2008, 05:49:43 pm »
Hi Sue-

Posting pictures is not an intuitive process!  Jan sent me wonderful instructions awhile back which I will try to recreate here (and Phyl or Jan can correct me if I'm wrong...)

Open an account (free) atwww.photobucket.com and upload your picture/s from your hard drive.  To update your Profile picture:

Once your picture is uploaded to Photobucket, click on the link below your photo that says "HTML Code" and right click to copy
Open your profile in the forum and click on the link on the left side that says "Forum Profile Information"
Click on the button that says "I have my own photo"
Right click to paste the HTML code link where indicated on the profile page

That should work.

If you want to embed a photo into a posting on your thread, you open the photo in PhotoBucket and copy and paste the "IMG Code" right into the posting. 

Hope this works - cant' wait to see your photo/s!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: Sue L Surgery Update
« Reply #34 on: August 16, 2008, 09:01:41 pm »
Sue -

looks like you did fine with Debbi's photo instructions.

Nice scarf  ;D

Glad to see your recovery is going well.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Lamsue23

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Re: Sue L Surgery Update
« Reply #35 on: August 18, 2008, 06:14:24 am »
I had my nepheu from Boston come and visit and I knew he could help me with this picture....I guess my BRAINS weren't working at the time.  I have been overwhelmed with company, phone calls a death in the family etc.......Now hopefully I can breath easier this week.......My AZ daughter had her plane flight cancelled at 11:00PM last night and my NY daughter had to drive her to Boston airport at 3AM this morning.......So much for these airlines!!!!

Things are progressing very well, my balance is still an isssue, taste (very glad) lost 8lbs.....Can we keep that one!!!!

Today I will call the hospital because I still don't know when I can take this HOT, Itchy, Smelly Hat off.....They told me not until I go and have my stitches out and I haven't received my appointment yet....Hopefully that's this week sometime.......

It is nice to have surgery behind and move forward .........Take care!!! That's All Folks!!!!
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SueL/from NH
Retrosigmoid Surgery 8/6/2008 DHMC, Lebanon, NH 7.5 hrs.
Dr. Erkmen - neurosurgeon
Dr. Morrisson - neuro-ostology
Loss of hearing 70% in left ear.
Vision and Balance issues...Taste!!

MAlegant

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Re: Sue L Surgery Update
« Reply #36 on: August 18, 2008, 08:13:54 am »
Sue, if you're feeling well enough to complain about the airlines than I think you're doing GREAT!! Keep up the good work and enjoy the first shampoo.  I have compared it to a religious experience though I mean no offense. 
Best,
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

wendysig

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Re: Sue L Surgery Update
« Reply #37 on: August 18, 2008, 08:26:24 am »
Hi Sue,
I'm so glad to hear from you, you've been on my mind!  It souinds like you're doing great and the picture is wonderful.  I'm sure that as much as you've enjoyed the company you'll be happy to have a littel peace and quiet again -- everyone wears you out with their well wishing!  Stay in touch!

Best wishes,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

sgerrard

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Re: Sue L Surgery Update
« Reply #38 on: August 18, 2008, 08:30:27 am »
Nice Scarf, Sue! Take care...

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Pooter

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Re: Sue L Surgery Update
« Reply #39 on: August 18, 2008, 09:22:01 am »
Sue - I agree.. if it's enough that you are complaining about the airlines, then you are doing great!  :)  Be well.  Take frequent walks, frequent naps and just be pampered all the way around..  ;)

Take care,

Brian
Logged
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Debbi

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Re: Sue L Surgery Update
« Reply #40 on: August 18, 2008, 09:27:29 am »
LOVE what you've done with the scarf, Sue.  Hopefully you'll get the all-clear to shampoo this week.  I agree with Marci's analogy that the first shampoo is akin to a religious experience! 

It is odd how much the bonnet removal/shampoo thing varies from one surgeon to the next.  I got my bonnet off before I left the hospital - day three - but others have had it much longer, and some even less time. 

Continue to rest and take care of yourself, Sue.

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Jim Scott

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Re: Sue L Surgery Update
« Reply #41 on: August 18, 2008, 11:39:10 am »
Hi, Sue:

My congratulations on your recovery but I'm sorry you still have to wear the head wrap, as attractive as it may be.  ;)

The airline hassles are really aggravating these days.  I hope your daughters finally get to you. 

I also hope, with you, that this week is a lot more calm and conducive to recuperating from brain surgery.  I've found that too much attention can be a hindrance to healing and I think you've learned that, too.  Remind folks that you love 'em but that you need your rest (the truth!)  Perhaps your daughters can 'run interference' for you and 'screen' your phone calls, etc.  Frankly, If it weren't for my caller I.D., I would have been pestered with calls I would have rather not taken.  My wife also served as my 'buffer' my first two weeks after being discharged when I really needed and wanted my rest - without visits and calls to deal with - well-meaning as they may have been.  Fortunately, my friends and family were understanding and I was back among the active within two weeks.  I have a suspicion that you will be too.  Keep moving forward. Sue.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Omaschwannoma

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Re: Sue L Surgery Update
« Reply #42 on: August 18, 2008, 12:14:33 pm »
Very happy to hear your good news and soon you'll be able to shower your head!  What a joy that will be!  I'm glad all is well with you and I love your scarf!  GROWL!  Hope you are feeling better faster!
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1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

wendysig

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Re: Sue L Surgery Update
« Reply #43 on: August 18, 2008, 01:59:08 pm »
Hi again Sue,

Everyone is right --that scarf looks great on you!

Debbi -
The Magic AN Scarf is a hit!!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

cindyj

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Re: Sue L Surgery Update
« Reply #44 on: August 18, 2008, 02:08:03 pm »
Hey Sue,

I agree, grumbling about airlines is a good sign that you're recovering!  You do sound good in your post.  As others have said - do get your rest!  Love the scarf photo!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings
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