Tinnitus and pulsatile tinnitus

[Crazycat]

Yes....I concur with everyone!

I have it at this very momonet. Strange how we can have such incredibly loud tinnitus in an ear that has no auditory nerve left in it. Do you also get that pulsation from the blood flow pounding in your ear / head?

                Paul

[tony]

Yes - I have a constant pitch/wail at 5,000 Hz  - sounds like a very top "C"
Interestingly, if I shut my eyes the tone changes slightly
(face nerves effect sound ?) Yes - its nerve breakthrough of some kind
I think fatigue or stress  makes it worse - and poor blood sugar levels
I tend to avoid places with loud background noises
I would try all the suggestions on the list and check out which is best for you
best regards
Tony

[ppearl214]

mine's more monitone/ringing, much more prevelent now since my CK, in my left ear. Right ear has finally calmed down post-treatment.  I get the "pulsating" more at night, when I'm tired... I need a "*spork"


*has anyone trademarked that term yet?*

[SKT]

Crazykat - i do think the pulsating is partly hearing the blood flow in your ear/head.

I also find that it is so much worse when I am tired or stressed. 

[Crazycat]

Yes SKT!

   It's weird. Sometimes I'll wake up from a deep sleep and it will be there - like a dull thunk......thunk......in my head / left ear. Then I'll get up and go out jogging for a couple of miles and it goes way. I have an Omron blood pressure monitor. I've stopped taking my blood pressure because it's always normal.

                                   Paul

[matti]

Tony  - I also notice that when I close my eyes or change head position my tinnitus will either increase or decrease in tone. 

Cheryl

[Gennysmom]

OMG, I've never noticed that!!!!  The pitch does go a little higher when I close my eyes.  Either that or you guys are messing with me.  Sometimes mine all of a sudden will sound like I've stepped into a fishbowl.  It gets echo-ey.  It only lasts for a few seconds, then that stops.  i can't pinpoint anything that precipitates that occurring. 

[matti]

Gennysmom - I know it's weird isn't it??  I can fluctuate the sound just by blinking. Who knew you could have so much fun with AN's 

Cheryl

[Gennysmom]

If we all joined together, we could have a whole brass band inside our heads.  That would be so interesting if there was a device that could project that sound that you're hearing so that others could hear what you're hearing. 

[Battyp]

Phyl I think sporks are trademarked its what the give the kiddies to eat lunch with...

Yes, I think someone should develop a device to imitate tinnitus noise so our loved ones can spend a full 24 hours experiencing what we put up with daily!

[SKT]

Yes Crazykat!!!!  I wake up in the middle of the night because of it, it thumps away so loud with all this distorted sound.  It's quite disturbing.

Do you find that yours gets worse when you are ill, run down or just when you've been reading or working for a few hours?  I am a lawyer - I used to work such long hours - I was a very strong and dedicated person.  Now that pulsatile tinnitus stops me from working like I used to.  I just can't concentrate on what's before me when that's going on.  I have very loud shrieking tinnitus anyway, but I can cope with that - the pulsating stuff just debilitates me, I found it painful and disturbing.

Oh, that's enough whining from me!!  I feel I must temper my tinnitus complaints with the fact that I am ever so grateful that I am alive and well.  I really am very very grateful . But life wouldn't be life without a good winge....

[Crazycat]

SKT,

         The pulsating tinnitus doesn't hurt at all; I just find it very disturbing. It makes me worry about an anueurysm or a stroke, even though I'm in great shape cardiovascularly.  Tomorrow at 1:30 I have  return appointment with my neurosurgeon and will ask him about this problem. I will pass the information on to you as soon as I know. I know there are special scans that can be done to detect something like an aneurysm before it's too late and will look into that. The wife of a friend of mine had surgury for a  brain aneurysm a couple of years ago.
Her symptoms were very much like my symptoms for the A.N.: dizzyness, fatigue, hearing difficulties and so on..... I think she may have had headaches as well. I however, did not suffer from headaches......

                    Paul

[***Leigh***]

When I was first diagnosed I asked my specialist if he could suggest anything to help with the tinitus... he suggested a low salt diet!  Has anyone else had this suggested to them?

Personally I do not think I eat a lot of salt but I do find that if I have a packet of crisps or a salty meal it does make the tinitus more pronounced!

I also find its louder when I am tired or stressed.

I have gotten good at blocking out noise totally by concentrating on what I am doing... mind you that often means I dont hear others speaking to me, especially at work!!!

I'd obviously rather not have tinitus but I think you just get used to it and can forget about it most of the time.  If I think about it or if it changes tone I tune into it again, but then quickly distract myself with something else to forget once again!

L

[Larry]

Tinnitus is a real pain isn't it. I hate it.

Now, the other day, I got one of these good health news papers in the mail and there was an article on this product called Tebonin. They say " Tebonin is formulated to relieve the symptoms of Tinnitus". "Tebonin is manufactured from a plant called Ginkgo biloba"(sounds like one of Captain Deb's jumbies to me but i won't let that get in the way of a good story). It comes in pill form and available from Go Vita stores. They give a free call number which is 1800 68 0056 - that's either a U.S or a Kiwi number. It's also meant to relieve the symptoms of vertigo.

I think I might enquire about it first but interested if anyone has tried it?

Laz

[Joef]

actually eye movement "T" is common for AN !!!  I have the eye close noise... and is louder if I look to the far right corner ..