Author Topic: Also a newbie  (Read 14353 times)

Nancy Drew

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Re: Also a newbie
« Reply #15 on: August 02, 2008, 02:13:58 pm »
Don't forget Steve--CK.  Wouldn't want to hurt his feelings because he is a great resource.  Of course, he tends to hang out at the fish hatchery a lot these days doing research on ANs.  Best wishes on your journey RiverGirl.  Nancy
12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

leapyrtwins

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Re: Also a newbie
« Reply #16 on: August 02, 2008, 06:12:54 pm »
(Oh, and we're all crazy aren't we?  ;) )


Hey, who're you calling crazy here  ???

We DO like to have fun - but not all of us are crazy!    :D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Also a newbie
« Reply #17 on: August 02, 2008, 06:42:39 pm »
(Oh, and we're all crazy aren't we?  ;) )
Hey, who're you calling crazy here  ???
We DO like to have fun - but not all of us are crazy!    :D

Ooh, Pooter got told off by a droll maven.  ;D

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Rivergirl

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Re: Also a newbie
« Reply #18 on: August 02, 2008, 08:12:52 pm »
You guys are too funny.  I am glad I have some time to weigh the options, I do prefer investigations before convictions, can you tell I work in law enforcement?
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

leapyrtwins

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Re: Also a newbie
« Reply #19 on: August 02, 2008, 09:41:41 pm »
(Oh, and we're all crazy aren't we?  ;) )
Hey, who're you calling crazy here  ???
We DO like to have fun - but not all of us are crazy!    :D

Ooh, Pooter got told off by a droll maven.  ;D

Et tu, Brute?

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

pauline

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Re: Also a newbie
« Reply #20 on: August 03, 2008, 08:01:04 am »
I am also on the watch and wait and I was diagnosed a month ago.  I have lost some hearing in my left ear, sometimes I feel like my head is slightly medicated, I get tired early afternoon and I have major tinnitus.  I teach piano and I also perform with a piano quartet.  My AN is 4mm x 9mm.  I joined the ANA organization a week ago, read all the brochures and contacted the local person in Phoenix and plan to attend the next support group meeting.  My neurosurgeon is at Barrows Neurological Institute.  I feel very fortunate as to have stumbled on to this website when trying to find out more info on my AN when first diagnosed.  Just reading all the comments on the website has helped me a lot!!  So I thank all of you out there and please continue as it is a huge comfort to those of us who are newly diagnosed! 
Pianist & Piano Teacher
Diagnosed 6/27/08
Watch and Wait

leapyrtwins

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Re: Also a newbie
« Reply #21 on: August 03, 2008, 08:16:16 am »
Welcome Pauline -

Although I'm sorry to hear you have an AN, I'm glad you found the ANA and this forum.

It sounds like you are on the right track - joining the ANA, contacting a local person, planning to attend a support group meeting, etc.

Barrows has a wonderful reputation - you're in great hands  :)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Rivergirl

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Re: Also a newbie
« Reply #22 on: August 03, 2008, 09:25:57 am »
Hope I didn't call any of you crazy.........it is me who felt crazy while I was misdiagnosed for 2 years before MRI. My Dr. said, maybe it was this or that but never did the MRI, even a few months ago when I said there must be something wrong in my ear canals, answer was no, (2 Dr.s)they look fine, I fell 3 times this winter and even showed the Dr. my huge bruise on my arm, still no MRI, after a while I really doubted myself. I told a friend about 6 months ago that I thought I had something growing in my head, I really wish I was wrong but sometimes we have this inner sense, I should listen to myself more, lucky it is not bigger than it is. Thanks for listening.........it is nice to vent my frustrations with people who know what I am talking about.
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

Pooter

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Re: Also a newbie
« Reply #23 on: August 03, 2008, 08:46:34 pm »
(Oh, and we're all crazy aren't we?  ;) )
Hey, who're you calling crazy here  ???
We DO like to have fun - but not all of us are crazy!    :D

Ooh, Pooter got told off by a droll maven.  ;D

Et tu, Brute?



YEAH!  Et tu, Brute!

Heh..  Is that better?  And, I didn't specifically call YOU crazy, Jan.  I said that we are ALL crazy.  So, there, nyah!  :p

Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

leapyrtwins

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Re: Also a newbie
« Reply #24 on: August 03, 2008, 11:09:56 pm »
Pooter -

you can call me crazy anytime.  It's been said before - most often by my ex in divorce court, but it was pretty much the pot calling the kettle black  :D LOL

As Jimmy Buffett said, "if we weren't all crazy, we would go insane"  ;)

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Also a newbie
« Reply #25 on: August 03, 2008, 11:19:35 pm »
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Rivergirl

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Re: Also a newbie
« Reply #26 on: August 04, 2008, 07:14:51 am »
Jimmy Buffet does have some good sayings....
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

leapyrtwins

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Re: Also a newbie
« Reply #27 on: August 04, 2008, 07:20:57 am »
Absolutely.

I'd quote a few more, but Phyl would probably tell me to get back on topic!  ;)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: Also a newbie
« Reply #28 on: August 04, 2008, 08:40:19 am »
Hi Rivergirl-
And, a belated welcome to our fun little club! 

Your story about the doctor misdiagnosing your for two years is yet another vivid reminder that we all need to be proactive in managing our health.  I am so glad you persisted and finally got the correct diagnoses!

Meanwhile, I noticed a quote from you that caught my eye:

Quote
I do prefer investigations before convictions, can you tell I work in law enforcement?

I think Phyl may need some help with some recent hijacking attempts ... there may be something here for you...   ;)

Wishing you well,
Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Pooter

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Re: Also a newbie
« Reply #29 on: August 06, 2008, 11:15:59 am »
Pooter -

you can call me crazy anytime.  It's been said before - most often by my ex in divorce court, but it was pretty much the pot calling the kettle black  :D LOL

As Jimmy Buffett said, "if we weren't all crazy, we would go insane"  ;)

Jan

Crazy! ;)  (I just felt like doing that!)

Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager