Looking 2 Contact a Patient of Proton Therapy @LomaLinda UHosp CA or such

[Idaho]

I am Looking to Contact a Patient of Proton Therapy at LomaLinda U Hosp in So-CA or a similar treatment
I am asking for CONTACT INFORMATION!!

HI, all!

I am contacting Loma Linda University Hospital to evaluate their treatment of Proton Therapy for treatment of my AN.

I'm looking to contact anyone that has ALREADY HAD their treatment THERE.  I WANT To see what their RESULTS were. 

Were you satisfied with the treatment?   

What would you do differently?

Would you do it again?   

Did it SAVE your hearing ......like they say it should?   

Did you have any problems with facial muscles...like they say one shouldn't?   

Did you have any side effects....like they say there aren't?   
They say it's SUPER for Prostate Cancer, but this is not that END of the body--ha-ha!!  I guess it is good for tumors that are difficult to get to without causing problems to another part of the body!

They have such a great site,  but, I want some DIFFERENT information.  Other people can check them out at...http://www.protons.com/

I also checked out...http://www.proton-therapy.org/  which is useful for information for other locations and contact info.


As well as this site:...http://www.rehabpub.com/issues/articles/2007-07_09.asp  which is an article I found ABOUT Proton Therapy.

But, I am LOOKING FOR SOMEONE WHO HAS DONE IT.  If you could write BACK to me, I'd appreciate it. 

THANKS!!   

IDAHO

[ppearl214]

Hi Idaho,

I know of folks that had Proton done here in Boston (the USA only has a few Proton therapy machines in the country, just fyi).  There is a woman here by the username "tsl"... (Theresa) and she had proton done on her AN late last year. I have to side note that I saw her 2 wks ago at our local ANA brunch and she looked terrific and noted she was doing well.  I also believe past site users of BostonJake and BostonAN (?) also had in Boston (Mass Gen Hosp offers proton... as Loma Linda and MGH seem to be the 2 biggest Proton centers).

I hope that helps.
Phyl