Author Topic: surgery  (Read 10236 times)

Cheryl R

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surgery
« on: April 24, 2008, 12:28:38 pm »
Hello everyone.    My surgery sure didn't turn out like I expected.      My face looks pretty good.   I am very forgetful of saying items though.       I was in ICU from Thurs eve until Mon.    They gqve meds so that I never slept right.    I was alert and up and at them past Mon.  I came home yesterday and slept almost the last day since hadn't slept good in a week.    I am starting to feel a little better. Tomorrow I get my head incision taken out at my dr here.   I am soon off the meds then too and hopefully will get to doing better.                 This just hasn't been quite like my other surgeries in the past.          Very maddening.              I was never dizzy post op which is good and I walk without needing any help what so ever.  Some food taste goofy and others are better.   I am just glad that I am starting to be around and it is weird how a week was out of my life.
                   I am even hearing a little better than what I was pre op.
                 I will keep things posted.                            Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

ppearl214

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Re: surgery
« Reply #1 on: April 24, 2008, 01:42:53 pm »
Cheryl!   :-*  I've been thinking of you and keeping fingers crossed that all went well. You hang in there and get some rest.  I'm cheering you on!

Hang tough!!!!!!!!!!!!  good to see you back!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

yardtick

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Re: surgery
« Reply #2 on: April 24, 2008, 05:20:45 pm »
You go Cheryl ;D

Keep getting beter.

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

leapyrtwins

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Re: surgery
« Reply #3 on: April 24, 2008, 10:35:55 pm »
Cheryl -

It was so nice of your daughter to keep us updated on your progress while you were unable to, but I'm glad you're back  :)

It must feel great to be home.

Best wishes for a continued recovery,

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Cheryl R

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Re: surgery
« Reply #4 on: April 25, 2008, 08:23:47 am »
I am still using the steroids for a couple days so not able to sleep as good as usual which is maddening.
I do not have to wear my dressing now and I am able to hear most of what people say so that is new for me.  I may not be doing the cochlear after all.             I can hear the phone some and the tv so will need toreadjust to it all.   
I go dr today and get inciision removed finally.                  I willl  be glad when get stronger as am bored with laying or sitting around.
                                                            Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

jerseygirl

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Re: surgery
« Reply #5 on: April 25, 2008, 08:59:36 am »
Cheryl,

Steroids take some time to get out of your system, so hang in there! It is WONDEFUL that you  can hear! I am so happy for you! Maybe, if that is the case, a regular hearing aid will work in one ear and Transear in the other? This is just a thought. I wonder what audiologist would recommend when you recover.

                        Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

MaryBKAriz

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Re: surgery
« Reply #6 on: April 25, 2008, 09:02:44 am »
I am still cheering you on! :)

Mary
Diagnosed March 24, 2008, 1.1cm, right side, "Goldie" - small but mighty!! :-(
Hearing, lottsa balance problems and a few facial twitches before CK
CK June 2, 2008, BNI in PHX, Drs Daspit/Kresl, side effects,steroids helped. Getting "sea legs".
Apr 2012 - Still glad I chose CK

Debbi

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Re: surgery
« Reply #7 on: April 25, 2008, 09:17:39 am »
More cheers from NJ, Cheryl.

Debbi - next up to bat
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: surgery
« Reply #8 on: April 25, 2008, 10:26:35 am »
Cheryl -

it's great news that you might not need the Cochlear and very encouraging that you can hear  :)

Although you are getting bored with laying and sitting around, don't overdo it.  Take care of yourself; you've been through a lot.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Brendalu

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Re: surgery
« Reply #9 on: April 25, 2008, 12:26:42 pm »
Cheryl,
I am so excited for you!  You'll be line dancing and jumping up and down trying to catch the tie on the for Capt Deb!!
More prayers and happy thoughts for a very speedy recovery!
Hugs,
Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

nancyann

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Re: surgery
« Reply #10 on: April 25, 2008, 04:09:56 pm »
Well Cheryl,  spoken like a seasoned nurse ! !   (you can never keep a good one down !).

I am so happy this went so well for you.   Continued healing my friend.

Always good thoughts,    Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
right facial paralysis
good to go.

Jeff

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Re: surgery
« Reply #11 on: April 28, 2008, 09:31:26 am »
I am still using the steroids for a couple days so not able to sleep as good as usual which is maddening.
I do not have to wear my dressing now and I am able to hear most of what people say so that is new for me.  I may not be doing the cochlear after all.             I can hear the phone some and the tv so will need toreadjust to it all.   
I go dr today and get inciision removed finally.                  I willl  be glad when get stronger as am bored with laying or sitting around.
                                                            Cheryl R
Great news! Keep on the recovery trail. I am glad to read that your hearing was preserved.
Take care,
Jeff
NF2
multiple AN surgeries
last surgery June 08

Omaschwannoma

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Re: surgery
« Reply #12 on: May 01, 2008, 07:10:57 am »
Cheryl,

Just read the wonderful news regarding your successful surgery and steady recovery.  I am very glad your outcome was a good one--you deserve this!  Hoping everyday shows more and more improvement with your memory--I do have issues with this still as my surgery was on the left side, but these issues are teeny, tiny and I hope the same for you! 
1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

Cheryl R

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Re: surgery
« Reply #13 on: May 01, 2008, 12:11:28 pm »
Today is my 2 weeks since my surgery.    I do pretty good but get annoyed over being tired off and on but that will improve in time.             I have no incision pain but some problem occ with the back of my neck.     
I am in good enough shape to drive myself to town to Walmart and get out if the house alittle.   I am 9 miles from town and a rural road so little traffic.             I made a trip this AM.   
I get by ok even with the forgetful problem.      I function fine and it is just when try and tell others about a certain thing that I do the forgetful bit. 
Pretty darn good actually considering that I was kind of out of it for 3 days after surgery and in ICU extra days.                                         
                                                   Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

nancyann

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Re: surgery
« Reply #14 on: May 01, 2008, 01:39:46 pm »
Cheryl:  so glad to hear you're continuing to progress,  & on the road again no less ! !

Always good thoughts,   Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
right facial paralysis
good to go.

 


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