I guess the nervousness has set in - in the fact that I keep myself SOOOOOOOOOOOOOOOOOO' busy with my kid's school (Parent Council, Year-Book Committee, Year-End Party and my Condo. Board) - that I really need to talk to all these groups and let them know that I may not be able to fulfill my duties from now until June (depending on when the surgery is) - how do I even go about approaching the kids school and explaining all this to them - I don't just want to come out and tell them I have a brain tumor ..... what do you say? - "It's benign ..... but I have a tumor".......
Denise, you are very, very brave with your decision for surgery. KNOWLEDGE IS POWER!! If your decision is an informed, prayerful and honest decision then I would say your decision is the right one.
I have to ditto Kate's reason for explanation. My wife was just diagnosed last week (Feb 6) and it has been a challenge deciding how to describe her illness. We told our closest friends and relatives straight up facts. To her co-workers and her managers she described her condition as an Acoustic Neuroma and will most likely have it surgically removed. When asked how long she might be away from work she told the truth - I don't know. From what I have read everyone seems to have different results. She did say the "growth" is benign and once removed, other than loss of hearing, there is nearly a 100% chance of full recovery. That explanation seemed to satisfy.
In your screen name I see 2boys. I would think your concerns of mortality are justified. Your feelings are not selfish or self centered as you have a great deal riding on your decision. Thankfully, as you can see, your not alone. Isn't it comforting to know you have a place to go where, "Everybody knows your name?"
If you have any boogie-bears trying to invade your thoughts, air them and let others lend support. We're all here to help each other. Hope is a good thing !!
I believe Steve hit the mark. One's personality and attitude has a tremendous impact when telling others about AN. After my wife was diagnosed and before telling anyone, even our son, we searched the internet for information. Once we understood this "speed bump" in our lives, telling others was easy. We didn't want to overwhelm anyone with lots of facts and figures - just the basics. She has a benign growth behind her ear that will someday have to be removed. The doctor said surgery would be easy because there is so much open space between her ears to work with. If however, someone asks specific questions we give specific answers.
We kinda used Steve's approach with our families who have internet. We took one of the pictures from the MRI, added arrows pointing to the tumor and wrote, Coty's boo boo along with information about AN. When telling someone about AN, a little humor (not TUMOR) lets he or she see your not afraid (even if you are). When friends and family see you at ease with your condition it also puts them at ease and they become more comfortable asking questions. This "comfortability factor" is allowing our family, friends and my wife begin the healing process starting from the heart.
Safety & blue skies,