Hello Marie. (I love your name....)
I also am a W&W starting in 97 but should have started 7 years prior to this (if my doctors had been slightly awake) All my symptoms were so precise pointing to the diagnostic, I could have done it myself. I get an MRI every 2 years and perhaps it will become 3 years now, the AN being now free in the cerebellopontis, plenty of room to grow (either it is not filled with brain or mine is soft and considerate), but it apparently does not grow much. I am now at a 2cm.9 total size but my ENT prefer to consider only the part of it free out of the auditory canal, and this is now 9 millimetre to a round 1cm.
Symptoms have settle nicely when the pressure inside the IAC was relieved naturally. I am still vertigo and can go "timber" when moving or turning too fast. my left hearing is 90% dead but the faint hearing is enough to secure some balance. The stabbing pains still come back rarely though and it proves me only that it is not dying. But the nauseas are gone, my brain has compensated to fake stereo illusion, it frankly does not bother me that much and I tend to forget all about it.
I bet a lot of people do have an unknown AN and live with the symptoms just wondering if it is age, or heredity that creates this slight handicap. My mother for one, certainly had all the symptoms, and my 2 sisters had operations of the ear canal with complete removal of something that had no name at the time, possibly ANs.. (50 years ago and more for the older one).
But I did improve a bit on the W&W condition but correcting 2 very debilitating symptoms, the dry eyes and the slight weakness of the lips that I suffered in the 90s, making it difficult to drink cleanly and to smile.
The first one by using the "biofeedback" system to recall moisture and tears, the second with elocution exercises learned a long time ago in a drama course.It is all perfect now.
I am absolutely convinced that I will not have treatment of any kind now for my AN. I will explain another time though.
Keep well Marie, all my wishes.