Do you expect the initial AN symptoms to go away with the CK?
Also the facial numbness, did you experience that before the CK also? Currently I have some of the numbness and also the twitching, will that get worse in the next few weeks since I've not talked to HEI and Dr. Chang yet and will not expect to make any decision as to which way to go soon.
I'm anxious and nervous at this time as to what will be my decision and the end results.
Thanks for all the time you and other have spent on this forum for us.
Glad to help around here... a thankless job but hey, someone gotta do it!
Actually, a great way for me to give back to the AN community as everyone has been there for me.
To answer your question....I note that the size of my AN, at the time of treatment, was/is the same size as your's....Like you, I have had facial numbness prior to CK. Couldn't figure out why until I got my AN diagnosis. Since CK, it comes and goes, but I have to say, in my case, it does appear to have lessened. My pre-treatment symptoms were not all that prevelant and difficult for me to confirm if it was the AN or my Chiari 1 diagnosis (as they both share many mirrored symptoms). In recent meetings with my surgical team (my back up team, if need be) and my CK treatment team, it seems that the majority of my symptoms do stem to my Chiari diagnosis, granted the only symptom that plagues me bad is my balance (those here that have met me have seen me in action with my "3rd leg" -- cane -- as it helps with my balance). I have slight hearing loss in my AN ear and as of last week during my hearing test, it was confirmed that my hearing is at the same level it was 16-18 mos ago, pre-CK. Overall, I have to note, in my case, I have been very fortunate that my AN symptoms have been mininimal and as long as I am not overtired/fatigued/stressed, my AN symptoms, including the facial numbness, is at a minimal.
Not sure if that helped.... it's 5:56am and not sure I'm fully awake.
I know you are doing all the research you can and am tickled that you are here, reaching out and asking questions... to become the best well-informed patient you can be.... hang in there.. and know we are all here to support you during this time. Once you make your decision, you should be able to feel that monkey off your back and time to roll on... and we're here to help!