Hello! This is my first post.
I was diagnosed with an 8mm AN in my right ear back in May, and my doctor recommended a watch a wait approach, with a folllow up MRI in 4-6 months. Unfortunately, my symptoms have been getting worse, the tinnitus seems louder at times, and I also experience increased facial numbness and tingling. My doctor feels that due to the location of the AN, near the confluence of the two nerves in this area, surgery is a better option, and that it should probably be sooner than later. While he has performed GK, he preferrs the accuracy of surgery and his ability to monitor damage to the nerves while the tumor is extracted. He has less confidence in the accuracy GK, sayng he can only ensure within 3mm accuracy. Last month I spoke with a another doctor, in a different state, an advocate of GK, who was confident in an accuracy of 1mm.
Jason_B, I feel your pain. The thought of losing hearing in one ear is devestating. I am an audiophile, play guitar, and love to sing to my children. I am able to reconcile the potential loss of my sensory experience with the knowledge that great people before me and around me have endured worse and soared higher. Think Hellen Keller, Ray Charles, and many of our brave soldiers returning from war with profound long term challenges.
I am leaning towards GK and will look for advice from my doctor to convince me otherwise. I am also looking for a local second opinion, a GK advocate, with a proven track record. It's frustrating beacuse the doctor I consulted with is highly recommended, but the risks and recovery time involved in an open cranial surgery are discomforting.
I am grateful for this forum and for the people who contribute their thoughts and experiences so generously.