Hi, Jackysue:
Welcome, lurker! Glad you decided to post. It can be sort of iberating, as you probably realize, now.
You are certainly correct that we all have similar but individually different AN 'stories' to tell. However, the similarities are what bond us, as we all share the same basis for our stories...a relatively rare, acoustic neuroma tumor.
I was sorry to read about your facial malfunction and can understand your confusion as to why you're experiencing problems as your surgeon claimed he didn't touch the facial nerve. Perhaps the
surgeon didn't disturb the nerve but the
tumor did ,and that produced the symptoms you are experiencing. Just a guess. I had some very minor post-op facial malfunction (couldn't smile quite normally) but it was resolved within a year as the affected nerve healed. Whatever aloof feelings you sensed between your surgeon and yourself are moot, at this point, four years later. I'm sure he was a fine doctor, even if a bit distracted at the time you engaged his services. I would definitely call the doctors office (Dr.Jacklers' replacement) and ask him to order an MRI scan, with contrast. No one likes having these done, but it's vital in order to observe on any re-growth of the tumor and if that happens, which is fairly rare, to address it while the it is still small. Generally, an MRI scan every year is the norm for post-op AN patients. You're behind on yours.
Although we often emphasize that an AN is
benign we have to remember that it's still a brain tumor and can have life-altering effects. From anxiety to depression, AN patients run the gamut. Some of us carry the effects of the tumor and resultant surgery for a lifetime...and it isn't always visible. I believe a positive attitude is imperative to a successful healing and I urge anyone experiencing concerns to address them with a responsive doctor. If your doctor isn't responsive, find another. It's your life and well-being at stake. You can't afford to compromise.
Now, call and schedule an MRI. Closer to home, if possible. Ask the doctor's office people if they can reccommed a facility nearer to you than the ones you mentioned that are a 5 or 6 hours drive. That's not realistic. There must be a facility closer to you. Check.
Meanwhile, thanks for posting. We look forward to reading about your progress in the weeks and months to come.
Jim