Author Topic: Top Tips For The 'Watch & Wait' Brigade!  (Read 185422 times)

keithmac

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Re: Top Tips For The 'Watch & Wait' Brigade!
« Reply #405 on: October 08, 2017, 05:31:12 am »
It's always good to learn that things are going well for a member.  I'm hoping I'll be at a similar point one day.   :)

So often it's the 'bad stuff' - understandably - that features on forum pages.  Here in the UK the website forum pages of BANA are little visited anyway compared with those of ANA.  Facebook seems to have seduced potential website members.

daoisthere

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Re: Top Tips For The 'Watch & Wait' Brigade!
« Reply #406 on: October 09, 2017, 05:21:45 pm »
Hi Derek,

Thanks for your encouragement.  I just begin the journey.  Baby steps... Baby aspirin steps.

Daoisthere
08/21/2017 MRI reveals AN
10.8 x 3.6 x 4.2 mm Completely fills Right Canal
10/09/2017 Watch and Wait
01/19/2018 2nd MRI  Tesla 3 12 x 5 x 4 mm
New Diagnosis - Partial Empty Sella

Derek

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Re: Top Tips For The 'Watch & Wait' Brigade!
« Reply #407 on: October 10, 2017, 03:21:51 am »
Hi daoisthere...

I have read your previous posts and your essential thorough research has undoubtedly had a major impact on the decision to choose conservative management of your AN. Albeit I have not personally taken aspirin I agree with your decision based upon the medical evidence which you outlined in another thread. Very best of luck on your AN journey.

Derek 
Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

daoisthere

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Re: Top Tips For The 'Watch & Wait' Brigade!
« Reply #408 on: October 10, 2017, 03:48:08 pm »
Hi Derek...

The wonderful support from this group is just unbelievable.   The anxiety was really having an impact on my tinnitus/outcome in general.  Now that I have made a decision,  I can already feel the effect it is having on my emotional outcome.  I know that things don't always workout the way that one plans on. But at least I am having my say on the matter.

Peace,
Daoisthere
08/21/2017 MRI reveals AN
10.8 x 3.6 x 4.2 mm Completely fills Right Canal
10/09/2017 Watch and Wait
01/19/2018 2nd MRI  Tesla 3 12 x 5 x 4 mm
New Diagnosis - Partial Empty Sella

LisaM

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Re: Top Tips For The 'Watch & Wait' Brigade!
« Reply #409 on: March 14, 2018, 09:55:25 am »
Greetings Fellow W&Ws

I'm not on the forum much anymore but someone PMd me today for an update and asked that I post to the forum. Here it is short and sweet:

Original diagnosis 4/2011.  Had my first MRI since 2012 last December (2017).  Tumor is stable.  Reduced by half in size from original diagnosis 4/2011; no change since 3/2012.  I still take 3 capsules of Honopure each night and meditate with mantra daily.  I do not hold a cell phone to my ear, use the speaker phone and use the cell sparingly.  I remain gluten & dairy free and enjoy red wine.  Had a bout of dizziness 10 days after MRI in December which caused some concern but that has corrected itself and may have had nothing to do with the AN.

This thread started by Derek gave me the courage to wait and watch.  I am eternally grateful for having found this forum.  Life is good!
Wait & Watch
1st Symptom Temporary SHL 7/10 AN Diagnosed via MRI 4/14/11
AN Size 4/14/11 = 1.4cm x 1.8cm x 1.7cm
AN size 7/14/11 = Same - Stable, no growth
AN Size 2/01/12 = 1.3cm x 1.3cm x 1.6cm (5mm reduction)
AN Size 11/27/12 = less than a centimeter! (50% reduction! And I can still hear!)

Derek

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Re: Top Tips For The 'Watch & Wait' Brigade!
« Reply #410 on: March 15, 2018, 04:52:09 am »
Hi Lisa...

Great to know that you are doing so well and that your original decision to 'wait & watch' was the right choice for you. Hopefully you will continue to maintain your progress as you are certainly doing everything possible to beat the 'enemy'. I am now into my 17th year since diagnosis and my AN is now rarely in my thoughts.

Regards

Derek
Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

Abetpds

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Re: Top Tips For The 'Watch & Wait' Brigade!
« Reply #411 on: May 06, 2018, 07:25:21 am »
Was wondering if there is anyone on the W&W list that has a tumor size greater that 4cm? 

Mrd1030

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Re: Top Tips For The 'Watch & Wait' Brigade!
« Reply #412 on: May 15, 2018, 08:21:40 pm »
Hi, I live in West Texas and was diagnosed with this AN in March 2018.  We have since met with Neuroontologist; Surgeon and Radiologist in Dallas at Southern Methodist Medical Center in May.  This group of Doctors were great and completely honest with me concerning  all options.  The wait and watch option made the most sense and with prayer this decision left me in perfect peace.   Derek, I have enjoyed reading your journey and I agree- we must take care of ourselves.  The forum has helped me learn so much about this tumor and so many brave people that are also on this journey!  I will continue to exercise to help me maintain my balance, and the hearing loss I am dealing with and the constant ringing I am adjusting too. 
Thank you all.