Hi Lisa and Derek and others - sorry I haven't posted sooner - been enjoying the Florida sunshine for the winter!!!
Lisa - When I was on the estrogen suppression drug (Arimidex), I was stable - unfortunately no reduction. When I went off the Arimidex, I had a 1 mm. increase which isn't really an increase but more likely a "technical" difference.
Ironically, I was going to post as I just had another head MRI but before my yearly scheduled one due in July. I have had a lump in the back right side of my neck (same side as the schwannoma) and it has become more problematic. It was CT scanned and ultrasounded two years ago and felt to be "muscular". I went to another ENT and he felt the same way but said he would order an MRI which would give a more definitive answer - completely up to me - he wasn't concerned. I opted to have it done and he "threw in" the brain-stem tumor too!! Well, the lump still is described as muscular - heat and Advil help but not long term. Will probably have to learn to live with it. The good news is the tumor is still stable at the same size as two years ago with no edema or pressure on the brain stem. I guess if they could go back to my first MRI ten years ago (November, 2001), it would show about 5 mm increase in that time. It was originally measured at 9 mm but I was told it seemed to be under-read and was possibly a tad larger.
I am in the process of obtaining the CD and forwarding it to my regular doc in Boston as I'm sure the July appt. won't be necessary now, and I am hoping I can move it up a year from now or longer. I just worry that as I age, IF this thing grows, I may have other health issues that need to be addressed but for now I am still happy on W&W.
Derek - keep up the race - I'll be glad to stay ahead of you!!