Dear Bruce, Mark and Greg,
Thank you for your kind words. It is good to hear people say that Stanford is one of the best. I am lucky in that regard. I am seeing noDr. Robert Jackler at Stanford. On Tues. I have an appt. with radiologist Dr. Iris Gibbs, and a neurosurgeon whom I can't remember the name, I think adler or chang. My memory is so bad lately, i thing due to the stress, and that this is always on my mind. It is tough to concentrate. Mark, you referred to HEI, what does that stand for. I'm so new at this I have not yet got the lingo.
I think after I see the docs at Stanford I'll try UCSF. I guess I have some time to decide, although even though my AN is small, It got diagnosed b/c I woke up one morning with vertually no hearing at all in the right ear. I had no speech recognition and the right side of my head felt like it was under water, which all lasted 2 weeks. It cleared up with prednisone, but Dr. Jackler says it is an active tumor that will not get better with time, only worse and since I have tinnitus all the time in that ear, I'm feeling like the wait and see mode is not so great. Bruce may I ask why you choose to wait, and if you have any symptoms? The whole quality of life issue is big for me too, as the options are not great. I hear for a living, and have a almost 4 year old son. If I can't hear I can't work, no benefits.
I will look into Dr. Larry Shuer, was he at Stanford or UCSF? Thank you so much for the referrals. It is just so helpful to talk with people who are going through this too.
. I would love to hear more about your own personal experiences with your choosen treatments. Good luck to all of you as well. Thanks for the support.