Hi all! I am new here and don't know where to start there are so many posts LOL. Sorry if this may end up being long. I had an MRI back in August because of dizziness and tinnitus 24/7, bouts of vertigo and also a bit of tingling in my fingers. It turns out I have an AN but it is small (according to the radiologist). My GP is having me see a neurosurgeon but can't get into to see him until 10/19. If I am on watch and wait, how do I deal with this constant dizziness, tinnitus and fatigue? I do have a problem concentrating on whatever I'm working on also. I have been trying vestibular therapy that my PT shown me but that does not help. I've been trying to learn as much as I can but it is a bit overwhelming and quite frankly, frightening. I'm already 61 and have dealt with NF1 all of my life. It's hard not to think about. Thankfully I have a very supportive husband and family.
Thank you for listening!