I'm SSD on my AN side with tinnitus, have hearing loss in my other ear and I'm 9 years out from CK with that said...
After first vaccine shot 48 hours later my tinnitus, which was only in one ear, got so bad I was crying and it started up in my other ear.
I'm SSD on my AN side and have hearing loss on my "good" side so after much research I decided NOT
to get the second shot or any further vaccines. I will not put myself at risk to becoming totally deaf!
The tinnitus has calmed down some but it's still worse than it ever was.
I've been to my ENT who did a hearing test, said my hearing had not changed thank heaven; however, a couple of weeks later I started having terrible vestibular problems. The dizziness and balance problems are almost as bad as they were right after my CK treatment. I went to my neurotologist who is sending me for PT for the vestibular problems.
Here's the interesting part, while being checked in at the neurotologist office the nurse and I had an interesting conversation. She said they've seen numerous patients with the same complaints as mine and actually have had two that lost their hearing!
I understand that people want to move beyond this pandemic but if I had known of these side effects I never would have gotten the vaccine.
It's a personal choice, good luck.