Ron and Sandy,
It truly is good to be able to have this kind of dialogue here. Thank you both.
Sandy, I too wish and hope that your hearing issues get resolved for you. And it's good that you have tretament on hand without having to wait to see someone. I am fortunate to have a neuro-ent who sees me pretty quickly. Also, for me it's reassuring to know that doctors from around the world come to study with him plus he teaches at the med school here and is involved in all sorts of things. I'd be scratching my head if I had to think who to see other than him, for example. As for the specialized blood tests you mentioned before it's good that others here are made aware of this sort of possibility. Support groups like this one have certainly created more informed patients. ( A benefit for both sides)
Ron, that is a long way to go for you, 400 miles; it makes my 1/2 to 1 hr trip for mine seem short lol . One of my other ENt's I've had who also was involved in teaching other ents ear things, etc. , referred me to my neuro-ent for more specialized investigations, so i'm happy to hear that you are doing this. Thanks for the best wishes re the mri. Between my fsr doc and my ear doc i am confident they are doing the best for me, it's always good to know they care for our good outcomes. Like you, I've thought well if i do go deaf i will simply have to deal with that (even as i think no. no, no....) at least we know we are doing what we can in the meantime.