Ali, we had a similar experience with an ENT when my husband was diagnosed. The guy had to have known what an AN was, but all he told my husband at the initial diagnosis was that he had some kind of benign tumor in his head and would have to talk to a neurosurgeon. When my husband tried to ask questions, the ENT basically said, "I don't know. You'll have to talk to a neurosurgeon." My husband said the ENT seemed very nervous, too. Evidently he had no idea how to talk to someone about bad news. He didn't even tell my husband the name of the tumor, so we had to go to the neurosurgeon to find that out. It made me really angry, because I'm sure he had some idea what an AN is (the name of the tumor and the size was on the MRI report, after all) and he just didn't want to give my husband the time to sit down and talk to him about it. Needless to say, he won't ever be going back to THAT ENT!!!