Author Topic: NF2 site and INFO  (Read 3623 times)

Windsong

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NF2 site and INFO
« on: February 21, 2007, 10:27:11 am »
Hi,

Not sure if anyone else has posted this or not, but by chance i found a site for NF1 and NF2 and noticed it lists in one of their menu listings, a whole bunch of research papers and various other information about NF2... seems to cover a lot of territory...

Here it is:  http://nfincmn.org

My apologies if this is old news lol...

W.

jerseygirl

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Re: NF2 site and INFO
« Reply #1 on: February 21, 2007, 08:18:15 pm »
Thanks, Windsong, this is new to me!

            Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

 


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