Author Topic: Trying to tell if dizziness is caused by my tumor - advice please!  (Read 13275 times)

matti

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #15 on: August 03, 2005, 01:15:48 pm »
Ali - LOL! I guess that is why my nickname is matti, - short for doormat.

have a great day!
3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

Gabi

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #16 on: August 03, 2005, 09:13:35 pm »
Joe . . . Good luck next week! :D

Gabi
1.8 cm
R Ear
*Possible NF2 (bilateral ANs) per MRI report..waiting to meet with specialist(s)

Assessing treatment options

BC Survivor :o)

kristin

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #17 on: August 03, 2005, 11:41:13 pm »
i am SO sorry. i wish i wouldn't have said anything. i hope that you'll find the support you are needing, here and at home. please understand that i was just trying to find something hopefull in a crappy situation.
8 x 5 mm Left Acoustic Neuroma
Middle Fossa
House Ear Clinic
Dr. Derald Brackmann, Dr. William Hitselberger
April 14, 2005

"I have told you these things, so that in me you may have peace. In this world you will have troubles. But take heart! I have overcome the world." John 16:33

alibauer

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #18 on: August 04, 2005, 08:11:40 am »
Hey Krisitin,

Oh please don't apologize. I'm sorry if my response made you feel badly. That wasn't my intention and I knew you were trying to urge a look on the bright side. I absolutely appreciate that. No worries at all.

The one I'm pissed at is my so-called friend. I think you are awesome to try to find the hopeful glimmer. I just know her and I don't think it's there.

Oh well. I have my husband family, better friends and the few co-workers that know (before surgery I'm keeping things on a need to know basis) for support. Everyone has been great and I'm doing well. I actually feel fortunate to find this out about her.

Ali

Joef

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #19 on: August 04, 2005, 01:45:33 pm »
Joe . . . Good luck next week! :D



Thanks!! at this point I'm looking forward to it  8) I wont be around here for a couple of weeks (I hear that the guest center at St. Vincent has a pc for guests).. as I work up to things, I'll logon and tell my story...

 Joe
4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

Goldineye

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #20 on: August 04, 2005, 02:21:34 pm »
Ali, I have read yourposts about your friend not calling you. Well funny thing my BEST friend  since kindergarden didnt call me after I had my surgery for over 7 weeks. Didn't even know if I made it through the operation alright. Then when she finally called I didn't want to talk to her. So my mom did. It took me a long time to forgive her and to this day our friendship is not the same. Also I had a lot of people that I was close to that till this day NEVER called me. It is so amazing to see who your true friends are. The funniest thing of all is that some of the closest people I knew didnt call me but people that heard about me from high school that I havent heard from in 20 years sent flowers and called me. Go figure. I heard that sometimes peolpe cant handle things. My best friend said to me that she didn't want to call , she was afraid to. Didn't know what to say to me. But I still can't understand. I am the type of person that would be at my friends bedside through it all. So that is why it is so hard to understand. Oh and better yet my brotherinlaw (the only one I have and was very close to) has yet to visit me or call me. My husband said he called him 2 times when I was in the hospital. @ weeks in and he never visited me. So sadly I decided it hurt too bad to keep thinking about why he never visited or called. I finally decided I no longer have a brother in law. I am very hurt by him and I need to move on with my life. So Ali your not alone out there.. Positive thinking you need that right now... Goldineye :)
Lori
3.5cm removed April7,2004
N.Y.U, New York

alibauer

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #21 on: August 04, 2005, 03:51:56 pm »
Hey Goldin,

Wow, I'm so sorry you had to go through the same thing to the nth degree! Thanks for sharing.

I'm with you on what to do to people that offer no support and show no caring. I plan to cut her out of my life if she keeps this up. When she calls (I still think she will because I think she's not called because she is clueless and self-centered, not because she is afraid or dealing badly), I plan on having a long talk about exactly how let down I feel and why. Hopefully that will fix the problem. I have to say though, right now I am so unbelievably disgusted with her that I'm almost hoping she never calls.

Ali

kristin

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #22 on: August 04, 2005, 07:25:26 pm »
actually now that i think of it..i got an email from my GRANDMOTHER before my surgery saying she was going to call but didn't know what to say. not that we're extremely close...but my GRANDMA?!? :)
8 x 5 mm Left Acoustic Neuroma
Middle Fossa
House Ear Clinic
Dr. Derald Brackmann, Dr. William Hitselberger
April 14, 2005

"I have told you these things, so that in me you may have peace. In this world you will have troubles. But take heart! I have overcome the world." John 16:33

alibauer

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #23 on: August 05, 2005, 07:47:09 am »
 ??? Wow. There are not words. ???

alibauer

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Re: Trying to tell if dizziness is caused by my tumor - advice please!
« Reply #24 on: August 06, 2005, 07:12:01 pm »
She called today. Not quite sure what to do about that. I was still asleep and she left a message saying that she's been worried but things have been "crazy at work". She is home from work an hour and a half before I am. This is the same schedule I was keeping when I was listening to her whine about her life night after night. It's a ridiculous excuse.

I want to tell her how disappointed in her I am, but I'm uncomfortable about calling back to confront her. If she calls again, I'll tell her. Maybe this is immature. I'm perfectly willing to be honest about my feelings, but I'm not willing to call. It's so complicated. I don't know why. Probably because the damage is done.

 


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