I am reposting this one for two reasons
1) it is definately NF2
and 2) the 15 yr survey results will be out soon.
With any NF2 treatment the absolute stats are so few we need care
- less we base outcomes/expectations on two or three examples
wonderful they maybe, but not statisitcally useful.
If you check out Sheffield Gamma knife (Royal Hallamshire Hosp-Uk)
They have 10 yrs long term stats on NF2/Gamma treatment, 100 patients approx.
It is published on the net - I think its the only long term/many numbers
survey on NF2 I have seen.
Basically 40-40-20 is the outcome over 10 yrs
40% no hearing change, 40% down but still there, 20 % no hearing.
If you are struggling, I think I can find the link for you
Basically its not quite as good as conventional A.N.s
- but I would not really expect that - but not bad at all
the (USA) NF2 Crew simply did not believe them
PS the update here is that the 10 yrs survey is shortly to be updated
to include the 15 yrs info - topline, no real changes in outcome
This rather confounds conventional wisdom that NF2 and radiotherapy dont mix.