Hi Michael and welcome.Ã‚Â I am not sure of your age if you were originally seen at Boston Children's (I'm out on Rt 128/Northshore).
There is a wealth of AN treatments in the Boston area.Ã‚Â I'm not sure how much AN treatment info you have read up but will try to help a little bit here:
Since your AN is considered small but growing (your's, at the same pace as mine), you do have options available to you.
1.Ã‚Â Sounds like you have been in "Watch/Wait" mode as this was your 2nd MRI.Ã‚Â You can continue this path and see what happens with its growth.Ã‚Â This is definately the time to research.
2.Ã‚Â Radiosurgery (a form of radiation but not "radiotherapy").Ã‚Â Boston offers many options, such as:
MGH:Ã‚Â Proton Radiation (expensive and not a lot of background on its efficiency, but there are a few on this website that have had the treatment, including BostonJake, who just completed his at MGH).Ã‚Â Here is a link for reference:Ã‚Â http://www.massgeneral.org/cancer/about/providers/radiation/proton/whatis.asp
Providence and Tufts University both offer GammaKnife.Ã‚Â ellenvig on this site just completed her Gammaknife at Providence with Dr Noren, a highly respected GK treatment specialist. I don't have the dr's names at Tufts in Medford, but also worth a look.Ã‚Â Ã‚Â A link for Dr. Noren and his team can be found at:Ã‚Â http://www.lifespan.org/svclines/profile/noren.htm
.Ã‚Â Here is the link for Tufts:Ã‚Â http://www.nemc.org/GammaKnife/team.html
Brigham/Woman's does offer FSR/Novalis.Ã‚Â Dr. Peter Black/Dr. Elizabeth Claus are heading the Neurosurgery and Brain tumor clinic there.Ã‚Â If you do a web search on Dr. Peter Black Neurosurgery, you will see how world renowned he is and his background. Dr. Claus is his protege.Ã‚Â A link for B/W's team is:Ã‚Â http://www.brighamandwomens.org/neurosurgery/patient/braintumor.aspx
Beth Israel offers Cyberknife.Ã‚Â As you can see by my sigline below, I had my CK treatment there last April.... and just saw my team there a month ago.Ã‚Â We have confirmed that my AN is now starting to die (my Xmas present to me from my drs).Ã‚Â Dr. Mehetaven is the lead dr (radio oncologist) and I cannot say too much thrilling words about him.Ã‚Â Their link is: http://bidmc.harvard.edu/display.asp?leaf_id=13361
3.Ã‚Â Microsurgery, should you decide to forgo the radiosurgery route:
MGH... Fabulous team as many here can attest (Crazykat, kbonner, jcinma, etc). They are lead by a terrific team of Barker and McKenna (and I think Martuza). Here is the link to MGH Neurosurgery team (which also does a brief notation on the Proton radiosurgery protocol):Ã‚Â http://brain.mgh.harvard.edu/therapies.htm#Pediatric
Again, Dr. Peter Black at B/W is also a forerunner in the local medical community for AN treatment, so either way, regardless if MGH or B/W, you are in fabulous hands.
I know this is a lot to absorb..... and know that we are here for you.... but it really is great that we have a wealth of medical treatment options right here in Boston. Many of us are happy to speak on the phones or on private emails if you care to learn more.....
Hang in there... be well.....