Dealing with sleep issues

[Palace]

 

I don't get sleep anymore and I'm getting rather tired.  I try so many things.  If I were younger, I think I would enter a "sleep clinic" at this point.  I'm sure the AN doesn't help me with sleep.  I'm hoping the ENT doctor will help me with this maybe soliving breathing problems at night due to allergies, I think.  (and AN doesn't help)  I will let you all know if I learn anything different on sleeping.  It is past three in the morning now; off to bed.



GOOD NIGHT AND GOOD MORNING FOR SURE.......



PALACE

[Lorenzo]

HI Palace,

I have a slight different problem. I sleep ok, even if some nights are better than others. I get my 7 or 8 hours sleep. But, I find that now I sleep at different times than before CK. I used to be regular 22.00 to 7.00. Now I can go to bed at anything between 19.00 and 22.00, mostly around 20.00. Hate it, makes socialising in the venings impossible. I mean, I HAVE to go to bed, no choice in the matter, I just fall asleep, no matter where I am or what I'm sitting on. Then of course I wake up at silly times, anything between 4 and 5.30. Staying in bed longer doesn't seem to help, going to bed later seems to make things worse. If I force myself to stay up later (like the last three days) I get up slightly later, but suffer for days afterwards. Fatigue, irritability, headchaes... Basically, sleeping is NOT a happy thing these days. At all.

One advantage of getting up early is the silence, no noises, no phones, nothing. PErfect. Plus, I can chat with friends across the atlantic, which is great!

MAybe I should try Valerian and see if I sleep longer.

Ciao, Lorenzo

[Battyp]

I was told my sleeping problems are due to adult onset add since my surgery.  Still waiting to see the doctor on a follow up appt to get some help.  I can't seem to shut my mind off when I go to bed even though I'm exhausted.  So I go to bed tired and wake up tired, doesn't seem to matter how long I try to sleep I'm always tired!

[Brendalu]

Lorenzo,
I have the same problem you have!  I go to sleep at crazy times and wake up at crazier times.  I also take at least an hour and a half nap every afternoon.  I was never like this before.  I have tried all of the sleep aids and I had nightmares, sleepwalking and talking, and was awake every hour.  I just sleep when ever or whever it hits.
Brenda

[Patti UT]

I was told my sleeping problems are due to adult onset add since my surgery. Still waiting to see the doctor on a follow up appt to get some help. I can't seem to shut my mind off when I go to bed even though I'm exhausted. So I go to bed tired and wake up tired, doesn't seem to matter how long I try to sleep I'm always tired!

"Adult onset"  now that's a new one. LOL  Yep, guess that's what my problem is. I'm just too much of an adult, can't be spending all lmy time sleeping so might as well wake up EVERY DARNED NIGHT bteween 1&3am and listen to my head roar/ring.

Just can't help myself, seems like the adult thing to do   LOL

Patti UT

[nannettesea]

I'm going to try something called Sound Therapy.  It supposedly recharges the brain, and also helps sleep.  Will keep you posted.
Nan

[Windsong]

add me to the adult onset gang.... i am often awake until 3-4 and even 5.... my brain doesnt want to shut down even when i think a big nothing and even when i am physically sooo tired....after a few days of that then i crash.... and get 9 hrs ... then back to the 3-4 hrs....

this is all new since a while after treatment...

sometimes i take an ativan; have tried valium; and sometimes a sleeping pill and some times none of them work.... I have a weird brain post AN...

W.

[kerri lyn angel]

yeah you can add me to the adult onset list too! i never ever had sleep issues my whole life. now not only wont my also very wierd post translab brain ever shut down in reasonable fashion but when it does finally the darn soundsin there wake me up! i tire ridiculously easy too. im actually starting to get used to waking up 4 to 7 times a nite since ive now been this way for a year and a half. ive kinda resigned myself to it but theres this one sound that comes randomly that causes extreme anxiety ( feel like ripping my own head off) and i hate when that one comes in the night cuz its scary.

[redgrl]

My sleep is all messed up again I can never fall asleep and when i do it's not for long. It makes for very long days with a 3 year old! 

[Battyp]

You guys sure can put a smile on my face )
Last night I was up and down so much now today I'm so groggy I've done nothing productive (  Will it ever end?

[Raydean]

Don't know if it helps, but following Chet's surgeries he was having sleep problems too, everything was out of whack.  We were told at the time by one of the neurosurgeons from the first team that " anytime the brainstem area is touch I can just about guarentee that there will be changes in sleep pattern" 

My youngest daughter has Chiari (non AN condition but also rare that involves the brain and brainstem) that as her Chiari has developed she has also had major changes in her sleep pattern and like the rest of you has been blown off by her doctor, "maybe your body just needs 3 to 4 hours of sleep."

best to all
Raydean

[ppearl214]

Raydean, make that 2 that you know that is going through this... AN and Chiari loss of sleep... oy

*plunks head on keyboard*

ow

Phyl

Don't know if it helps, but following Chet's surgeries he was having sleep problems too, everything was out of whack.  We were told at the time by one of the neurosurgeons from the first team that " anytime the brainstem area is touch I can just about guarentee that there will be changes in sleep pattern" 

My youngest daughter has Chiari (non AN condition but also rare that involves the brain and brainstem) that as her Chiari has developed she has also had major changes in her sleep pattern and like the rest of you has been blown off by her doctor, "maybe your body just needs 3 to 4 hours of sleep."

best to all
Raydean

[Static]

I guess I'm one of those with adult onset too!  I need to get up in the mornings though and if I don't get enough sleep the night before, it's torture.  I've been taking simply sleep (tylenol pm without tylenol) and when it was really bad, I took Lunesta.  Getting into a little better pattern now but if I can't sleep, I have to take something or else stay up til about 3am :/  My doctor tells me it's stress (adult onset stress no doubt)!  I have no idea where I could be getting any stress   

[Featofclay]

Has anyone tried a sound machine to help you sleep?  My husband bought one at Radioshack and it has several different sounds...we like the rain sound the best.  It does help me sleep better....BUT I have not had my surgery yet.  It is scheduled for February 16th in LA.  I still wake up between 3:00 and 3:30 a.m. every night...don't tell me it is going to get worse after my surgery.   

[Brendalu]

Featofclay......it sounds like you are staying on top of everything!  No one can say whether or not or sleep patterns will be interrupted after your surgery.  Each person is different.  We will all keep you in our thoughts and prayers and maybe if you keep telling yourself now that you are going to sleep restfully every night from now on...just maybe you will.  I don't but it's worth a shot.  If I wake up during the night I just get up..play on the computer or read or crochet and make myself comfortable on the couch with lots of pillows and a nice comfy blanket and if I fall back a sleep that's great.  If not I have gotten some reading done or some crocheting  or some relaxing and you  better believe I take a nap whenever I need it!  Best wishes.  Keep us posted on your surgery.
BrendaO