Anyone have Binocular Vision Dysfunction caused by their tumor?

[carriekartman]

I'm still struggling with disorientation when moving, some clumsiness and fatigue doing simple things on my feet (and I'm a pretty active person; working out daily, biking, hiking, yoga, swimming etc) After being discharged from PT, because my vestibular testing was good (it was a low bar in my opinion), I was referred to ophthalmology, and they think it may be BVD caused by my tumor, since head movement with visual tracking brings on symptoms. This does make sense, but I've not heard anything about it here, or in ANA webinars etc. I would love to hear from others with similar symptoms who had their visual systems checked out.

[carriekartman]

Hi Friends, replying to my own message here, because I found a link to an NIH paper which notes possible eye movement impact right in the Introduction, and another mention in an article from "Braintumor Research" in the UK.

So much no one tells us! I'll see a neurologist soon, and hope to learn more about how to resolve this. I'm still interested to hear from you if you have experienced eye movement/processing issues, and if you've found effective treatment.

https://www.ncbi.nlm.nih.gov/books/NBK537359/

https://braintumourresearch.org/blogs/faq/how-does-an-acoustic-neuroma-make-you-feel

[mwatto]

Hi I found that prism glasses work best now for me.