Author Topic: My case  (Read 1857 times)

peter0411

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My case
« on: August 07, 2024, 12:37:46 pm »
Hi all,

looking for some help. Here's my story

-July 3 experienced hearing loss in my RIGHT ear
-went away within a day on its own
-Came back July 15 (same ear)
-Started Prednisone on July 17. On day 3 of prednisone, my hearing came back 100%
-Until now, Aug 7, my hearing has been normal, but I am feeling some numbness on my scalp/behind my ear but on my LEFT side.

Any thoughts??

MarlaB

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Re: My case
« Reply #1 on: August 07, 2024, 03:04:11 pm »
Have you been officially diagnosed with an acoustic neuroma?

Marla B.

UkulelesAreAwesome

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Re: My case
« Reply #2 on: August 07, 2024, 05:14:59 pm »
Marla, If you're the same person who wrote A Whole New Normal An Acoustic Neuroma Journey, your book has kept me sane over the past few months. I've read a few other books, but none were as honest and as helpful as your book.

DanFouratt

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Re: My case
« Reply #3 on: August 08, 2024, 09:41:30 am »
When I started my journey and was just dealing with hearing loss I went to two doctors.  I wanted a second opinion and I really liked the second guy.  He sat me down after the examination and said "You do not have to do anything, but talking to you like a brother, if you can afford it get an MRI just to be safe." I did and they found the tumor. My advice is the same to you, If you can get an MRI.  Good luck on your journey.

Dan
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

mwatto

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Re: My case
« Reply #4 on: August 16, 2024, 12:49:33 am »
Hi there - I Was wondering how you are doing now. Are you still getting the ear pain? I still get it it if I lie on that side - so been over 5 years lying on other side. It seems very  few people have this symptom and no one I have consulted thinks its the AN even though this was my only presenting symptom.  Lately I have been pain free am combining l theanine with magnesium, small amt taurine and some melatonin and sleeping better which helps.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing