Author Topic: Update 5 year MRI results  (Read 707 times)

mwatto

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Update 5 year MRI results
« on: February 12, 2024, 11:21:17 pm »
Hi all just checking in - no change to AN or hearing this year. A big relief as I had RSV and Covid last year and was worried!
Also I checked with my specialist on something - one cant take antioxidants during treatment but after 5 years post CK, he said fine re supplements I am taking.
He also said he prefers it if I continue to come in every year so I will. Plus they can track brain health generally.

« Last Edit: February 12, 2024, 11:23:53 pm by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

DanFouratt

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Re: Update 5 year MRI results
« Reply #1 on: February 13, 2024, 05:08:11 pm »
Great news!

Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23             TBD Not Scheduled

SP

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Re: Update 5 year MRI results
« Reply #2 on: February 14, 2024, 12:22:07 am »
Great news Michele!!! Curious as to why every year?

Stella
My AN Story – Sydney to Stanford CK
2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

mwatto

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Re: Update 5 year MRI results
« Reply #3 on: February 14, 2024, 01:42:01 am »
Thank you much Dan and Stella! x
Yes I dont get it either.  He is very old and a bit vague so I dont know except he said he just prefers it. I do get my own reports and I am seeing a neurosurgeon Prof Lewis  this Friday- only because I made the appt a year ago re ear pain when I lie on that side and because some non-specific white matter hyperintensities in cerebellum  showed on MRI last year. My GP said ageing most prob the cause.
Prof Lewis is an expert on radiation and AN and I have questions such as supplements and if I am at risk for dementia post radiation and viral infections.  My attitude is that the annual MRI its free - plus its a good way to check my brain health too as I get older- am 63 now. I feel fantastic health wise and would like to stay that way.
« Last Edit: February 14, 2024, 01:52:36 am by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

donjehle

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Re: Update 5 year MRI results
« Reply #4 on: February 17, 2024, 04:06:52 pm »
Thank you for sharing the update on your progress, and thanks for being part of our ANA community!
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

mwatto

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  • Posts: 402
Re: Update 5 year MRI results
« Reply #5 on: February 17, 2024, 09:03:47 pm »
Thanks Don!
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing