Hi Roggae, thank you for checking on me, I just now noticed this.
I had a bad few weeks of dizziness, it was incapacitating but seemed to be triggered by dental work I needed done before having surgery (on my tumor side), I was in terrible pain from that plus dizziness. Do you have severe dizziness? I’m feeling like an anomaly, I’m not sure why mine is so severe? Sometimes all I can do is lie around as things spin and I feel sick for days. But then I go through phases of feeling more normal, it’s so weird!
My surgery date (retro) was moved to Nov 1st BUT I just went for all my pre-op stuff and we did another MRI because my last MRI was June. The surgeon said no change at all in my tumor so he said that makes my surgery NOT an emergency at this point. He said it’s totally up to me if I want to wait 3 months or keep my surgery date. Ugh these hard decisions! The problem is the level of dizziness is interfering with my life, and a tumor my size… I would just be delaying the inevitable because the surgeon said at my size he doesn’t see it staying stable the rest of my life. Any growth and surgery would need to be done. But this whole thing felt so rushed since I found out about the tumor. So for now all I’ve decided is to take the weekend off from having a tumor lol. A little vacation from thinking about it. Still trying the one day at a time but it’s hard. Today is Sunday and all I need to do today is watch football. I don’t need to make any decisions today. I will think about tomorrow once it’s tomorrow.
What made you choose surgery and when will your surgery be? Which surgical approach?
I hope you are doing well considering the circumstances, I know how difficult this whole thing is! That’s amazing you got all those opinions! I only got the two opinions (Georgetown and UVA) but I’ve been limited by my insurance. Both institutions gave me the same opinion though and they are highly rated doctors, I do feel like I’m in good hands at UVA but I am still terrified of the surgery