Author Topic: New contrast agent for MRI  (Read 1150 times)

mwatto

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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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Re: New contrast agent for MRI
« Reply #1 on: March 10, 2023, 02:23:46 am »
" Lower-dose gadolinium now being used for MRIs with contrast"
"High-quality image with half the dose"

thanks for the research link Michele-- lower dose -- sounds like progress to me :)

Stella
My AN Story – Sydney to Stanford CK
2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

mwatto

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Re: New contrast agent for MRI
« Reply #2 on: March 10, 2023, 07:47:10 pm »
For sure Stella. I continue to use non contrast (will save contrast for emergency). My specialist fully agrees. I just feel its inflammatory and not needed for tracking...
« Last Edit: April 03, 2023, 07:15:43 pm by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

Freelander

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Re: New contrast agent for MRI
« Reply #3 on: April 03, 2023, 04:21:34 pm »
For five years I had no contrast for my MRIs due to Gd being suspect for some kidney damage, after it was first used to diagnose my AN.  It has been about 2 1/2 years since I had GK, and this week will be my third MRI.   Over this latter timeframe, my concerns about Gd have been somewhat lessened as I have been given 1/2 doses of Gd, which have helped me, a non medical specialist, appreciate the dimensions of the tumor, which hasn't stabilized yet.   As an aside, had I been able to discern the true shape and location of my tumor with contrast during the five years when I didn't use it, I just may have had treatment sooner.   

mwatto

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Re: New contrast agent for MRI
« Reply #4 on: April 03, 2023, 07:18:36 pm »
Mine was discovered without contrast- but I had to have contrast for CK and the first MRI after. At 4 years its showed shrinking. I think for me given how hypersensitive I am to everything (bad reaction to Pfizer) I will only use if something is flagged. So far so good...for one thing I think it affects the thyroid and I suspect neuroinflammation. I feel the type of contrast is also important.
« Last Edit: April 03, 2023, 07:21:21 pm by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing