Author Topic: Alternative Therapies?  (Read 260 times)

Clairetaylor

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Alternative Therapies?
« on: October 11, 2022, 04:12:49 pm »
Hi AN community

Has anyone had any luck with alternative therapies which have helped with that lightheaded, spaced out, detached from reality feeling that comes with the dizziness?  Or the dizziness itself?  Also, does anyone feel like stress makes these symptoms worse?  My specialist says stress is a non issue with AN symptoms.

Thanks :)

Claire
Diagnosed by Kaiser May 2019
2mm growth to 9mm x 6mm x 7mm Jan 2021
Cyberknife, Stanford, end Jan/early Feb 2021

donjehle

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Re: Alternative Therapies?
« Reply #1 on: October 13, 2022, 04:58:03 pm »
Hi Claire!  Thanks for posting again!

I'm not a physician and cannot give medical advice.  All I can do is share my personal experience.  I don't want to speak against your specialist, but it seems that the stress I was going through did seem to make my symptoms worse.  I never documented the severity of my symptoms with the severity of my stress.  That would have been helpful if I had done that.  But it sure seems like my symptoms were worse on stressful days.  And your mileage may vary (as they say).  What is true for me, might not be true for you.  Our journeys, while similar, are often different.

In terms of alternative therapies, Michele is probably the best person to speak to that.  I believe in alternative therapies, but for my dizziness, I sought out a qualified vestibular therapist.  She helped me a lot by having me repeat a number of exercises.  The other thing I did (which my therapist never recommended) was I watched exercise videos with my eyes closed.  At first, it was challenging to do without falling, but it eventually seemed to help with the lightheaded feeling.

I wish you the best, Claire, on your journey!
Don
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

Clairetaylor

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Re: Alternative Therapies?
« Reply #2 on: October 13, 2022, 08:59:55 pm »
Cheers Don! I’ll see if I can message Michelle :)
Claire
Diagnosed by Kaiser May 2019
2mm growth to 9mm x 6mm x 7mm Jan 2021
Cyberknife, Stanford, end Jan/early Feb 2021

 


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