Author Topic: Headaches  (Read 131 times)


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« on: September 21, 2022, 10:26:13 am »
I had an acoustic neuroma cyber knifed in 2012 at Stanford. Every couple of years I would have a large hearing decrease and would go on steroids and most would come back. This happened just before thanksgiving and I couldn’t get in until Monday. Thought it was water in my ear. Steroids brought most back but louder tinnitus. Had two more flair ups in March.  Steroids for first but for second the doctor said after this one I couldn’t go on steroids for a while.  Family physician said you can only be on steroids 3 times a year. So I treated with heavy doses of ibuprofen to save steroids for a major attack. Worked faster than steroids but headaches continued for 2 weeks and went away.  Had another flair up in July and treated again with 600 mg 3 x day ibuprofen. Hearing better but headaches are still hear everyday.  High pitched sounds are painful. I wear a hearing aid and have it adjusted almost to no help at all. Got in touch with Stanford and the doctor feels it a virus of the auditory nerve.  Waiting for results from mri. Does anyone have information about this? Thank You
Born deaf in left ear, Diagnosed AN in right ear 2/1/ 2010 4 x 3 x 2mm; 8/1/2010 4 x 3 x 4mm; 9/1/2011 6 x 4 x 4 mm; 3/1/2012 8 x 4 x 4mm; Recommendations: U of Penn-GK; Stanford-CK; NY-CK; Cooper-Novalis; Pittsburgh-GK; HEI- still waiting ; Treatment: Stanford-CK 5/10/2012 (Dr. Chang, Dr. Soltys)


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Re: Headaches
« Reply #1 on: September 25, 2022, 07:39:43 pm »
I have found melatonin very useful - I do not have tinnitus- and read this helps -plus it helps damage to the acoustic nerve. I also had CK 3 years ago.
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.