Author Topic: 11 years post gamma knife  (Read 1892 times)

Dee-dee

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11 years post gamma knife
« on: September 14, 2022, 12:46:35 pm »
October 10, 2022 will be 11 years since my treatment with gamma knife for a 2.3 cm left side acoustic neuroma pressing on brain stem. During those years I've adjusted to the new normal: tinnitus, one sided deafness, balance issues etc.  Tumor is there but has not grown. Life is good.  Wishing you all well. Dee-dee
2.3 cm AN.   Hearing loss and other symptoms. Gamma knife 2011.

mwatto

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Re: 11 years post gamma knife
« Reply #1 on: September 16, 2022, 02:54:27 am »
Thats wonderful! Am only 4 years out- mine also going well. Gives me hope to read your post. I still have hearing no tinnitus.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

gbly

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Re: 11 years post gamma knife
« Reply #2 on: September 20, 2022, 12:41:32 pm »
Dee-dee
What wonderful news and congratulations.  Like mwatto says your success gives us all hope and we always love to hear the good news.
GB

SP

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Re: 11 years post gamma knife
« Reply #3 on: September 28, 2022, 05:13:23 am »
That's good news Dee-dee !! Great to hear your progress post 11 years from treatment.

I had a similar size on Left side, displacing the brain-stem, and I had Cyber Knife in 2015. Yes it's an adjustment over the years for hearing loss, tinnitus and some facial numbness, the last two have improved over time, and some tumor shrinkage this year! Overall doing well.

wishing you the best
Stella
My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

mwatto

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Re: 11 years post gamma knife
« Reply #4 on: September 28, 2022, 07:50:54 pm »
Hi SP! So glad to hear all is well with you!
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing