Author Topic: Update: CI activation after translab surgery at UCSD  (Read 1573 times)

lryan42

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Update: CI activation after translab surgery at UCSD
« on: April 01, 2022, 02:49:24 pm »
Hi everyone,

This is an update to my previous thread about my adventure with my vestibular schwannoma.  I'm cross posting this from Reddit; my most recent previous thread here: https://www.reddit.com/r/MonoHearing/comments/sz1c3d/update_after_surgery_for_my_unusual_acoustic/

So, I got my implant activated at UCSD last Tuesday.  What a crazy experience!!  I have a Cochlear Americas N7 and Kanso 2.

I really tried to have "high hopes and low expectations" since there are so few people with SSD from an acoustic neuroma who have received a CI.  And, of course, everybody's CI experience is really different.

I was prepared to hear nothing, or just beeps, or whatever. Well, when they turned it on I could understand speech immediately!  My wife spoke to me from my deaf side and I turned my head in that direction in response and then started crying.  I had regained sound localization!  Holy cow!

So I'm headed back next week for the next mapping session and I know it is going to take some (a long) time to fully integrate the CI and good ear, but I'm really encouraged.

The sound quality is very "chipmunks"ish but seems to be improving each day.  If I stream Bluetooth directly into the implant (e.g., audio book) I can follow 80% of what I hear provided the speech is not too fast.  Some sounds are harder to distinguish and pitch is sort of messed up.

But all in all, this is a tremendous improvement in my quality of life.  I'm, again, so grateful.

Update to follow next week
2017 - Mild vestibular symptoms. misdiagnosed. Normal hearing.
2018 - MRI w/o contrast: ambiguous. Normal hearing.
2019 - MRI /w contrast: 5mm x 4mm x 3mm AN.  Moderate hearing loss.
2020 - Completely SSD.
2022 - 6x4x4 mm with 3mm extension into cochlea and semicircular canals.  Surgery UCSD + CI.

donjehle

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Re: Update: CI activation after translab surgery at UCSD
« Reply #1 on: April 02, 2022, 06:28:51 pm »
Thank you, Iryan42, for your update.  Your experience is a very valuable one to share!

I am so delighted that you could hear your wife speak to you from your deaf side.  This was all very encouraging news!

I will be looking forward to your update next week.  It sounds like they did a great job at UCSD.

Best wishes on your continued recovery!
Don
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

Alyssa

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Re: Update: CI activation after translab surgery at UCSD
« Reply #2 on: May 22, 2022, 06:10:28 pm »
Congratulations! Any update for CI?

I am curious how good the technology is, since I did surgery by Fredman and Schwitz in 2018 and lost the left side hearing. Sometimes I use Bose hear aid under noisy environment.

Thanks for sharing...

 


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