Author Topic: Drug treatment  (Read 1950 times)

hewei2004

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Drug treatment
« on: February 03, 2022, 04:43:52 am »
I remember seeing an old post here that taking honopure helps. Wonder how common is the experience.
Is there anyone else taking Honopure or Sulforaphane and witness shrinkage of VS?

donjehle

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Re: Drug treatment
« Reply #1 on: March 03, 2022, 11:25:14 am »
I see that it has been a month since you posted this thread, hewel2004, and no one has responded yet.  I am not familiar with honopure.  Have you started taking it?  If so, have you noticed any difference?  I realize that you might not know if there was any shrinkage until your next MRI.  But I am curious to know what your experience has been (if you took it).
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

mwatto

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Re: Drug treatment
« Reply #2 on: March 17, 2022, 08:13:24 pm »
Hi I took it for a while and I juice broccoli every day - certainly Lisa M said it helped her. I work on the PAK-1 pathway so keeping inflammation low tho I take a number of supplements for this: ginger shots, bromelain, fucoidan, melatonin, boswellia, D3 and K2, fresh veggie juice (celery, broccoli, snowpea shoots, carrots, apple, beetroot). A while back I got help from Prof Maruto who studied Nf2 and PAK-1 and although I dont think I have this its the same pathway. Funny enough ivermectin and other compunds like curcumin, propolis, honopure also help though I dont take those at the moment. I also take the occasional low dose aspirin (I have a high salicyitate diet) and antihistamine. So my focus daily is anti viral, anti histamine, anti inflammatory. My 3 year MRI is stable. Good enough. I feel healthy despite 5 months side effects Pfizer one.
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.

Clover131

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Re: Drug treatment
« Reply #3 on: March 30, 2022, 06:41:18 am »
I started taking it about a month ago.  I found the "most bioavailable form" from France called BROQ.  In France it is called "Prostaphane." I also take Bio30, Boswellia, Curcumin, Aspririn, Honopure, Quercitin, Berberine, Vitamin D, and Green Tea Extract. 

donjehle

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Re: Drug treatment
« Reply #4 on: April 02, 2022, 06:42:07 pm »
You have a lot of knowledge about natural remedies, Clover131.  Why is it that you currently take what you do?  And what are the benefits of those supplements for AN?
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

 


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