Author Topic: Linda 30 days out and face problems  (Read 7973 times)

lmurray69

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Linda 30 days out and face problems
« on: November 30, 2006, 03:31:47 pm »
 I got the scare of my life I have been doing so good and then this morning I woke made a cup of coffee and my face started pulling from my eye to the corner of my mouth..it really scared me..By the time I got dressed it had begun to relax.. It is still numb, and tingley, lots of pressure around the eye and cheek..I put a call into house..has anyone been out this long and this happen..
radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

Sam Rush

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Re: Linda 30 days out and face problems
« Reply #1 on: November 30, 2006, 03:46:31 pm »
are u 30 days post surgery? Your signature said radiation.    After surgery 10-30 days you can get some swelling(temporary) of facial nerve w/ a Bells palsy that could last up to 30 days.  If you are almost 2 yrs after radiation, then I don't know.
1 cm AN translab, Dr. Brackmann, Dr. Schwartz, Dr Doherety HEI   11/04   Baha 7/05

lmurray69

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Re: Linda 30 days out and face problems
« Reply #2 on: November 30, 2006, 03:56:47 pm »
sorry I had not updated ,I had radiation /then surgery. I am 30days sence I had surgery..
radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

Raydean

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Re: Linda 30 days out and face problems
« Reply #3 on: November 30, 2006, 06:17:06 pm »
Alot has changed in the past nine years since Chet's post surgery time, but i clearly remember the Doctor stating that sometimes it will look as if there is a setback "changes in the face" but it's actually good news and a good sign in that the nerves are comming back.

But I am also glad to hear that you're checking with your doctor. 

Hugs
Raydean
Do not go where the path may lead, go instead where there is no path and leave a trail.

Obita

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Re: Linda 30 days out and face problems
« Reply #4 on: December 01, 2006, 06:21:08 am »
Linda:

The same thing happened to me.......it felt like my nerves were playing tug-o-war.   

Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

lmurray69

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Re: Linda 30 days out and face problems
« Reply #5 on: December 03, 2006, 09:00:38 pm »
As you probly know here in Missouri got 21 inches of snow, well I went across the street to see a friend and my face on the AN side drawed up tight couldnt even get my eye to open or focus.. THis is scary.. even when i wake up some mornings it draws up..then release.thank god..It feels like there is a worm under the skin..my chin tingles...thanks for the good news now how long will it be like this
radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

lmurray69

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Re: Linda 30 days out and face problems
« Reply #6 on: December 05, 2006, 08:12:09 pm »
Dr  at house pu tme back on the steroids and antibiotic to help with my face.. I have to watch my diabetis a little closer now.but if the out come is good GO for it.. right..
radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

Obita

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Re: Linda 30 days out and face problems
« Reply #7 on: December 05, 2006, 08:17:38 pm »
Yes Linda, do whatever it takes. 

We have all had little set backs........Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

amylynn

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Re: Linda 30 days out and face problems
« Reply #8 on: December 05, 2006, 08:22:23 pm »
Hey Linda, I feel for ya with the facial pulling etc.  They put me back on the steroids for two weeks after my facial paralysis started ( day 11 post-op.  It seemed to help and I have gotten more movement back.  Like everyone said the nerves take time to heal, I am clinging to that hope right now.  You hang in there and leave me your number, I will give you a ring.    
amylynn 
3.0cm AN left
sx 10/26/06
House-Friedman/Hitselberger/translab
35
MO