Author Topic: how many time can one have cyberknife???  (Read 3985 times)

tenai98

  • Hero Member
  • *****
  • Posts: 916
how many time can one have cyberknife???
« on: November 19, 2021, 11:15:41 am »
Brief history,
2009...translab
2016...cyberknire
2017....retro
2021...regrowth.....How often can one have cyberknife.  It did kill the tumour, but only the inside.  Outside perimeter was still alive and is now growing again....from 17x7mm in Feb/2018 to 18x12mm this past novermber.   My neurosurgeon's office is closed until monday.   Just wondering if anyone has had more than one, or two treatments???
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

gbly

  • Full Member
  • ***
  • Posts: 149
Re: how many time can one have cyberknife???
« Reply #1 on: November 27, 2021, 08:15:53 pm »
tenai98,
I am so sorry to hear that it has regrowth.  I don't have an idea but please keep us posted.  We all will be thinking of you and good luck.
v/r GB

gbly

  • Full Member
  • ***
  • Posts: 149
Re: how many time can one have cyberknife???
« Reply #2 on: February 25, 2022, 11:30:06 pm »
tenai98,
Reaching back to see what your doctors said?  All worried about you and wanted to make sure you are okay.
GB

gary.s

  • Full Member
  • ***
  • Posts: 153
Re: how many time can one have cyberknife???
« Reply #3 on: February 26, 2022, 11:45:38 am »
Hi Tenai98,

I had five sessions of Cyberknife during April 2018. About one year ago my tumor increased in size by 2 mm. I am now on watch and wait again to see if it continues to increase in size. My next MRI is in September. I have been told by two different neurosurgeons and a radiologist that a second dose of radiation increases the risk of the tumor becoming malignant. If my tumor keeps growing, the doctors say that surgery is the safer option, although I am not convinced. I go back and forth in my mind, taking a chance with another dose of radiation or having brain surgery. It just seems that you have to weigh the risks and make a choice. None of the choices are any good, so when the time comes, if it comes, I will have to make a choice and deal with the consequences. Best of luck on your decision.

Gary
Mild symptoms on right side July 2014
CK April 16-20, 2018, Barrow Neurological Institute
9/2018 hearing aid Phonak Audeo B and Cros B

donjehle

  • Hero Member
  • *****
  • Posts: 500
Re: how many time can one have cyberknife???
« Reply #4 on: March 07, 2022, 12:01:51 pm »
I'm also wondering what the latest update is on Tenai98?

And gary.s, please keep posting your status after your next MRI in September.

Your stories impact the ANA community!
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

gbly

  • Full Member
  • ***
  • Posts: 149
Re: how many time can one have cyberknife???
« Reply #5 on: March 14, 2022, 07:07:23 pm »
gary.s
Sorry to hear you are back in a ww status.  Please keep us posted as donjehle mentioned, your input is so import to us all.  We will keep you in our thoughts.