I woke up this morning at roughly 5AM, looked up at the time projected on my ceiling in big red numbers, as I always do. I hadn't even moved in bed yet, just opened my eyes to check time after coming to awake consciousness. But the numbers were constantly moving and wouldn't be still so I could read them. I stayed put for a few minutes, hoping the movement would go away. After a bit, it did seem to slow down, tho not go away entirely, so I got up and tried to make it to the bathroom. I felt very wobbly and unsteady on my feet when I got out of bed. It was very hard to walk like that, way worse than my usual "can't balance in the dark" feeling of being disoriented with the occasional fall into the wall. Surprisingly, I did not feel significant nausea, maybe just a twinge. It took several minutes for the movement to slow to a stop. I was afraid to go back to bed because it happened when I was sleeping. For approximately 15 minutes of so after it appeared to stop, I still felt on the verge of it, like it could start back up at any moment.
There was also a flashing in my left eye that had cataract surgery 2 months ago. I developed Cystoid Macular Edema in that eye one week after surgery. Still putting in eye drops, last OCT scan on Oct26th showed improvement but not total resolution yet. The flashing has been happening already, not a new symptom. I told my eye surgeon about it, but he had no comment or explanation. I figure if it was anything important, he would have said, though I did have to get a 2nd opinion to get diagnosed with the CME as he didn't see anything wrong when I said my vision was blurry either. The flashing is in center of my vision in operated eye, and has been worse in the mornings upon awakening and for first few hours of day, then gets better in the afternoons. It is like looking straight at a ceiling fan with a light on it. I can still see it even when I close my eyes. I can still see it in the dark, tho even the smallest light source will start it up, like looking at the little green light on the smoke alarm on the ceiling when room is dark.
Last MRI for AN was in February 2021. I didn't let them use the gadolinium that time because I've had reactions to it in the past. Report said AN was "stable". Last measurement before that was 6x4x4mm, with additional extension laterally out into cochlear aqueduct. That report also mentioned no fundal cap seen, which doctor says translates to dry canal (it's supposed to have fluid in there, apparently). My plan is to stay on Wait and Watch as long as possible, forever if I can.
In the past several years (AN found in 2014), I've only experienced vertigo when I forget that I can't move too fast, or I see something that is spinning. Like playing with my cat and swinging the kitty toy around too fast, and the room starts spinning. Or one of the grandkids will start spinning around on the barstool that swivels, and just the quick glimpse before I can look away will start up the vertigo. But those times, it only ever lasted for a quick minute or two, then went totally away. This was so different than that. Does anyone know if this means anything significant, or as I'm hoping, just par for the course of having an AN?? I sure hope it doesn't mean that the stupid AN has decided to make more trouble for me, because Bad Timing if that's the case. Still working on healing my eye. Btw, AN is on right side. Cataract surgery was left eye. Eyes are now about a diopter different in refraction. Cataract surgeon missed the target by quite a bit, and left me more even more myopic than I was. Eyes don't match up right. -2.00D in un-operated right eye, -3.00D in left IOL eye after surgery (was -2.25D in that eye before surgery). I don't know if this could cause the vertigo, or if it's related to AN?? IOL was placed 2 months ago, this is first time I've woken up with vertigo.