Author Topic: Cyberknife  (Read 309 times)

TOM101

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Cyberknife
« on: April 18, 2021, 07:48:46 pm »
Its been 6 years now since I layed on the bed for 1 hour 3 days at Stanford for my Cyberknife treatment by Dr Chang's group. Easiest procedure ever and absolutely no after effects. Neuroma slowly disappearing. Thanks Dr Chang.  Would recommend for anyone who qualifies, can't imagine the pain of accepting the surgeries advised by others.

bjhk

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Re: Cyberknife
« Reply #1 on: April 19, 2021, 11:11:51 am »
thank you,  Good news!

I wasn't aware the neuroma disappeared, I thought CK just Stopped the growth

How often were MRIs were needed?

mwatto

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Re: Cyberknife
« Reply #2 on: April 21, 2021, 02:41:33 am »
Hey Tom thats great! I am two and a half years out also three sessions for mine. Had some shrinking and no side effects to mention. Hearing and balance ok - some dry eye and occasionally throat stabbing and ear neuralgia. Comes and goes as mine close to trigeminal. Your post gives me hope. What I often wonder is I was told that Cyberknife spares healthy tissue- so what causes long term radiation effects then if its conformed to the tumor? I dont understand. Are you taking anything supplement wise? I emailed Professor Maruto who has studied neurofibromatosis pathway for 30 years and taking Bio 30 propolis. This has def helped my nerve pain but tastes awful lol! I also take PEA, boswellia nd bromelain and melatonin.
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.

notaclone13

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Re: Cyberknife
« Reply #3 on: May 02, 2021, 01:11:08 pm »
Thanks for the information regarding Bio 30 propolis. I was not aware of Dr. Maruto’s work. What does PEA stand for?

mwatto

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Re: Cyberknife
« Reply #4 on: May 04, 2021, 09:53:29 pm »
Hi its stands for palmitoylthanamide. Here in Australia no script required.
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.