Author Topic: Planning CK treatment at remote location with long haul flight  (Read 10413 times)

KaiJiaH

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Re: Planning CK treatment at remote location with long haul flight
« Reply #15 on: April 13, 2016, 12:58:52 pm »
Thank you Stella for your clear explainatiin.

I am very glad to hear you only have minor symptoms. Hope you best luck with your next MRI.

Waiting to board to Munich at Sydney Airport at moment.

KJ
Left AN diagnosed 28 Jan 2014 - 11x6x7 mm
MRI 23 Apr 2014 - 9.4x6.5x5 mm
MRI 21 Jan 2015 - 14x7.2x6 mm
MRI 31 Jul 2015 – 15.2x8.1x7.3 mm
MRI 29 Jan 2016 – 16x10x8mm
Hearing and balance not impacted, not much symptoms, Planning CK treatment
Left thyroid cyst that is shrinking slightly

SP

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Re: Planning CK treatment at remote location with long haul flight
« Reply #16 on: April 17, 2016, 03:14:43 am »
Hi KJ,

Safe travels & the very best of luck to you. The CK treatment itself is much less stressful than the diagnosis... I hope that everything goes smoothly, including the plane rides :)

Thinking of you & wishing you the very best outcome.

S
2.9 x 2.9 x 2.5cm Left AN (May 2020) @5yrs
2.9 cm (Mar 2019) @4yrs
2.9 cm (Aug 2018) @3yrs
3.1 cm (Aug 2017) @2yrs
3.2 cm (Aug 2016) @1yr
3.2 x 3.0 x 2.5cm Left AN (Aug 2015) ==> CK @ Stanford, August 17-19, 2015 (Drs. Chang & Soltys)

KaiJiaH

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Re: Planning CK treatment at remote location with long haul flight
« Reply #17 on: May 04, 2016, 10:43:02 pm »
Thank you Stella and all people who answered my post here.

My treatment in Munich went quite smoothly. We also went to Paris after the treatment. The rides of flights were just normal. I did not feel hard at all. I brought some natural anti nausea products but did not needed them.

I have block and full ear feeling that comes and goes. On the second morning after the treatment, I feel declined hearing at left ear (AN side), it got better in the afternoon during first few days. If I rub and massage around my ear, it helps. I feel it is more like a “mechanical issue” inside my ear than nerve damage. Has anyone have similar experience? Will this symptoms improve over time?

I have booked appointment to see my ENT and Surgeion Dr Flanagan. Will also do hearing test.

Dr Muacevic gave me 3 pills after treatment. They are Dexamethasone and I took one immediately after the treatment. on the second day of the treatment we walked in English Garden in Munich, the total walking distance was 18KM and 25K steps. Must be the pill gave me the energy. :-)

We are back to Sydney on 27 April and I am back to work this Monday but working from home this week.

Thank you again
Kai-Jia
« Last Edit: May 04, 2016, 10:56:30 pm by KaiJiaH »
Left AN diagnosed 28 Jan 2014 - 11x6x7 mm
MRI 23 Apr 2014 - 9.4x6.5x5 mm
MRI 21 Jan 2015 - 14x7.2x6 mm
MRI 31 Jul 2015 – 15.2x8.1x7.3 mm
MRI 29 Jan 2016 – 16x10x8mm
Hearing and balance not impacted, not much symptoms, Planning CK treatment
Left thyroid cyst that is shrinking slightly

SP

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  • Posts: 141
Re: Planning CK treatment at remote location with long haul flight
« Reply #18 on: May 05, 2016, 07:45:19 pm »
Hi KJ,

Great to hear from you !! & that your treatment went smoothly.

You may find many symptoms come & go over time -- i still get that fullness feeling in mine; but not all the time and not as much as I used to.

Yes the Dexamethasone  certainly can put a spring in your step :) take things easy and positive thoughts help too.

It would be great to chat with you about your experience in Germany, if you feel up to it - I sent you an email with my details.

wishing you a smooth healing journey

my best,

Stella
2.9 x 2.9 x 2.5cm Left AN (May 2020) @5yrs
2.9 cm (Mar 2019) @4yrs
2.9 cm (Aug 2018) @3yrs
3.1 cm (Aug 2017) @2yrs
3.2 cm (Aug 2016) @1yr
3.2 x 3.0 x 2.5cm Left AN (Aug 2015) ==> CK @ Stanford, August 17-19, 2015 (Drs. Chang & Soltys)

ivana

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  • Posts: 7
Re: Planning CK treatment at remote location with long haul flight
« Reply #19 on: February 23, 2021, 12:28:42 pm »
Thank you Stella and all people who answered my post here.

My treatment in Munich went quite smoothly. We also went to Paris after the treatment. The rides of flights were just normal. I did not feel hard at all. I brought some natural anti nausea products but did not needed them.

I have block and full ear feeling that comes and goes. On the second morning after the treatment, I feel declined hearing at left ear (AN side), it got better in the afternoon during first few days. If I rub and massage around my ear, it helps. I feel it is more like a “mechanical issue” inside my ear than nerve damage. Has anyone have similar experience? Will this symptoms improve over time?

I have booked appointment to see my ENT and Surgeion Dr Flanagan. Will also do hearing test.

Dr Muacevic gave me 3 pills after treatment. They are Dexamethasone and I took one immediately after the treatment. on the second day of the treatment we walked in English Garden in Munich, the total walking distance was 18KM and 25K steps. Must be the pill gave me the energy. :-)

We are back to Sydney on 27 April and I am back to work this Monday but working from home this week.

Thank you again
Kai-Jia

Hi KaiJiah, I am newly diagnosed with AN and planning trip to Munich. Please tell me how do you feel today after few years? How is your hearing today? How it was just before CK and did it decline after therapy? I am professional musician and this means world to me...doing researching for 2 months already and I am close to decision. Thank you so so much!

 


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