Author Topic: Radiaiton/ Hearing Presrvation for 45 Year Old  (Read 701 times)

ngerson

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Radiaiton/ Hearing Presrvation for 45 Year Old
« on: January 22, 2021, 12:13:56 pm »
I was recently diagnosed with 1.2 x. 7 AN. Lost 40-60% of hearing and returned with prednisone.
I have read from others and some doctors have mentioned concerns about radiation and long term consequences.
Have any of you in the "younger population" opted for either raidation Gamma or Cyber?
If so, can you please share your experience?

Age
Size and Location?
Treatment Date?
Doctor/Facility
Treatment Type: Gamma, Cyber or Fractionated?
Side Effects
Was your hearing preserved? If so, for how long?
Tumor Control/Outcome?
Issues with balanced before or after?




BigJoeBass48

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Re: Radiaiton/ Hearing Presrvation for 45 Year Old
« Reply #1 on: February 18, 2021, 12:27:22 am »
1x2 x .7 right? Mine is 1.6x1.8x1.6 diagnosed at age 59 in January of 2017 when AN was 0.8. I took Prednisone once after shoulder surgery and I turned bright red like I had a sunburn for a day and hiccuped for 24 hours. But man, if it brings back hearing I'd take it as long as possible. These surgeons want to zap my brain 3 times in 3 days but the side effects I've read about here are AWFUL! Vision, hearing, balance loss? I always read about the "middle fossa" surgery and it seems to preserve hearing for many.

mwatto

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Re: Radiaiton/ Hearing Presrvation for 45 Year Old
« Reply #2 on: February 18, 2021, 02:09:13 am »
Hi Big Joe I had three session of CK two years ago and no side effects so far...!
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.

BigJoeBass48

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Re: Radiaiton/ Hearing Presrvation for 45 Year Old
« Reply #3 on: February 28, 2021, 02:09:12 pm »
MWatto-----Glad to hear you are having no side effects after 2 years. I spoke to all 5 CK surgeons over past 2 years, scary stuff, especially hearing loss. But I am going for it, can't let it get bigger and have even MORE issues from the radical surgeries. TY

 


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