Author Topic: Cysts gone after CK?  (Read 1823 times)

mwatto

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Cysts gone after CK?
« on: October 05, 2020, 08:01:29 pm »
Hi am very curious to know if this has happened to anyone else. My 19mm AN had two cystic components evident on first and planning MRI. Yesterday I got the results on my second MRI follow up after 18 months - bit more shrinking and now off the brainstem - and NO cysts visible. I had specifically asked for a focus on this aspect as always nervous re the unpredictability of cystic in the literature. My specialist Professor Joseph here in Perth who has about 30 years experience as a radiologist oncologist told me that my body is healing well and confirmed what the MRI report had mentioned twice - no cysts are now visible. Am really thrilled but also amazed. It seems the treatment has caused them to rupture or be absorbed.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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Re: Cysts gone after CK?
« Reply #1 on: October 05, 2020, 11:46:24 pm »
Excellent news Michele!
You've had a positive rapid response to CK with pressure off the brain stem and the cysts gone too.

keeping on in good health,

Stella
My AN Story – Sydney to Stanford CK
2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

mwatto

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Re: Cysts gone after CK?
« Reply #2 on: October 07, 2020, 03:11:56 am »
Thank you Stella! Yep healing well as my specialist said. I am really surprised that cysts would go though. I never read this anywhere. However the MRI report was emphatic as I asked them to check.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing