Author Topic: Needing help from 65-or older people who have radiation first and then surgery .  (Read 1940 times)

MG

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Hello everyone,

I need help. I am a 70 yr. old woman who had Cyber Knife in 2016 on my 1.3 cm tumor. Just recently my MRI showed 2 mm. of growth.  :(  The radiation did not work for me. I am also having occasional facial spasms or facial droop that last  a few seconds at a time. My doctor is giving me 6 months to see what happens and another MRI. He then says I will have to have surgery and that most likely I will have facial droop.  :'(  I am so frightened. I also have a heart problem and wonder how I would do in surgery. The doctor told me it would be a difficult surgery because my tumor is sticky from the radiation. I hope someone can give me some help.

Thanks,
   MG
Resides Inverness, Fl.
Diagnosed w/ AN tumor Aug 2013  9x5x6mm
 2016  1.3 CM Touching Brain Stem 
'Wait and Watch' is over. w/ symptons of tinnitus along w/ ear pain and pressure most every day. Will be having Cyber Knife in June 2016

tsaff88

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Hi MG,

I had GK followed by surgery several years ago, before I turned 65.  The surgery was a success and I've recently been released from the annual MRI.  Before surgery the surgeon said that there was no way of predicting what they would find during the operation. The ENT stressed that each AN is unique and that predicting what they would find or what the end result would be was just that, a prediction, not a certainty.  Postop he reported that everything was clean and that they did not encounter anything unusual.  They were able to remove all of the AN excepting a small tail.  I was apprehensive going into the operation but I was more concerned about stopping the AN from growing into my brain.  BTW the surgery was done by Drs Haberkamp and Gonzalez-Martinez at the Cleveland Clinic.

Good Luck!

MG

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Hello,

Sorry it took me so long to reply. My mind is in turmoil. I am having facial droop episodes every day. I went on steroids to see if it would  help but no luck. I have to face the fact that my facial nerve is being crushed. I am having all the same symptoms as I had when this nightmare began in 2013.  Earaches, headaches, fullness, and balance problems. I really had faith that the Cyber Knife would work on my 1.3 CM tumor. Now after almost 4yrs since CK. it has grown 2 more MM. So disappointing.  :(
Thanks for your input . I am happy yours turned out well .  :)

Take care,
  MG
Resides Inverness, Fl.
Diagnosed w/ AN tumor Aug 2013  9x5x6mm
 2016  1.3 CM Touching Brain Stem 
'Wait and Watch' is over. w/ symptons of tinnitus along w/ ear pain and pressure most every day. Will be having Cyber Knife in June 2016

MG

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 Hello Maria Odete,

I am a woman of faith also. My husband and I pray daily. It does help but there is also the waiting and wondering. Yes, God hears our prayers.

Thank you,

 MG
Resides Inverness, Fl.
Diagnosed w/ AN tumor Aug 2013  9x5x6mm
 2016  1.3 CM Touching Brain Stem 
'Wait and Watch' is over. w/ symptons of tinnitus along w/ ear pain and pressure most every day. Will be having Cyber Knife in June 2016

Maria Odete

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  • Psalm 37:23,24 - Leviticus 20:26 -Romans 13:4
Dear MG,

You said thank you to me on your post.You are welcome.

Maria Odete
Dx: 3.5 cm Acoustic Neuroma. Complete Resection.
Year of Surgery: 1992

Psalm 83:18: "Let men know that You, Whose Name Alone is YAHWEH ,are the Supreme Head over all the earth!" - The Holy Scriptures
Isaiah 43:10 - Isaiah 54:17  -
Psalm 105:15 - Isaiah 65:13,14 - Psalm 105:3 -The Holy Scriptures

Rocky

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Dear MG,
If you really don't want surgery, why not get a second opinion. Maybe another radiosurgery would be suggested?

mwatto

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My CK specialist told me if mine fails down the line we would zap it again. I had 3 sessions almost two years ago ...
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.

mwatto

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How are you doing MG? What did you decide? Wishing you a better 2021.
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.

 


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