Hi I had Gamma Knife about 15 months ago at UVA, by a Neurosurgeon who has treated hundreds of AN and his clininc over 10,000 GK procedures for various brain tumors. Overall I have done amazing. I had 14mm at beginning and am in the swelling stage now 15 months out of treatment. I am fortunate to have never had facial issues or headaches. The tumor does swell around 6 months and most everyone reports some type of swelling and side effects are different for each. I had the swelling and I have had dizziness for about 6 months and now 15 months out I am doing very well. I have been running anywhere from 3-5 miles a day. I climb mountains, hike mountains, ride bikes, etc. Still have occasional dizziness but it used to be daily. I had the procedure on Thursday and went to work the following Wednesday.
In regards to the swelling, that means the tumor is reacting to the radiation and it is common to do so. My tumor is measuring around 17-19mm right now but staying stable. I will go again in 6 months for another mri.
also with side effects, my doctor was very clear that I might experience swelling and with that have side effects and to call them if i did, which i did and they put me on steriods. he also was very clear about the hearing aspect saying most people have diminished/loss of hearing 5 years after radiation. My hearing has decreased in the 15 months and I am about 56 percent in the AN ear. I can still hear but it is somewhat distorted and I carry earplugs everywhere.
I have no idea how my journey will end up, I chose the treatment I felt best for me. My doctor is very active in continual monitoring of my AN and he stresses followup is important.
I wish you the best in your journey and am glad to answer any questions.