I'm in W&W for a small AN until November when I have a follow-up hearing test and MRI. My hearing on the affected side is only slightly below normal, and my most obvious symptom now is the fullness in the ear and the ringing, which is intermittent-ish. I did have a dramatic vertigo event a month ago that sent me to the doc, but nothing since then. I *might* hav a pituitary tumor as well, or so my primary doctor suspects. It didn't show on my recent MRI, but the pituitary protocol also was not followed, so I'll get an answer about that as well, in November. I'm being assessed for NF2 in August.
When looking back over this past couple of years, I am thinking about the number of times that I have become upset--as in angry, tearful, frustrated, disturbed--about some kind of noise happening in my environment, like someone talking on the phone nearby in a public place, or music in the grocery store that felt too loud. I would feel like I either HAD to get the noise to stop, or I needed to escape. Almost like a low-level panic. I have even wondered at times if I was on the spectrum and just undiagnosed, because I felt such sensory overload about something that many others wouldn't even notice.
Has anyone else had this experience? I'm sort of trying to piece it together with having the AN.